Pittsburgh Dystonia Zoo Day Returns in 7th Year

Family-Friendly Event on September 18 Brings Visibility to Little-Known but Surprisingly Common Brain Disorder
Dystonia is the 3rd most common movement disorder.
Dystonia is the 3rd most common movement disorder.
PITTSBURGH - July 28, 2022 - PRLog -- WHO: Members of the Western Pennsylvania Dystonia Support Group are bringing awareness to dystonia and raising funds for research toward a cure. When Ed Cwalinski had deep brain stimulation surgery 22 years ago, in a desperate attempt to control his relentless body spasms, he was the youngest person with dystonia to have the procedure. MaryRae Nee also underwent deep brain stimulation 19 years ago to control her severe dystonia. Chris Mack, Co-Host of The Fan Morning Show on 93.7 The Fan, and wife Tara Sorley are participating in honor of their 9-year-old son Braden who has dystonia. Jillian Johnson and family are rallying behind 9-year-old son Liam who is affected.

The Dystonia Medical Research Foundation (DMRF) is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.

WHAT: Pittsburgh is one of eight cities hosting a Dystonia Zoo Day in 2022 after a two-year hiatus due to the Covid-19 pandemic. Fees are $25 for adults/$15 for children (12 and under) and include zoo admission, refreshments, and t-shirt, plus registration for Virtual Dystonia Zoo Day Kick-off Celebration (August 18) and Virtual Dystonia Zoo Day & Closing Ceremony (October 8). Proceeds benefit the Dystonia Medical Research Foundation. National Sponsors are Allergan, an AbbVie Company; Ipsen Biopharmaceuticals; and Merz Therapeutics.

Dystonia is a disabling brain disorder characterized by excessive, involuntary muscle contractions that cause twisting, repetitive muscle movements as well as sustained, abnormal postures of the body and limbs. There are many manifestations of dystonia that impact people of all ages and backgrounds. Conservative estimates state 250,000 Americans are affected and up to 70% are misdiagnosed.

WHEN: Sunday, September 18. Registration opens at 9:00 am. Event begins at 10:15 am. September is Dystonia Awareness Month.

WHERE: Pittsburgh Zoo & PPG Aquarium - Garden Tent, 7370 Baker St, Pittsburgh, PA 15206.

MEDIA: For more information and interviews contact Jessica Feeley at contact@dystonia-foundation.org, or visit: https://dystonia-foundation.org/pittsburgh-zoo-day . For information on the Dystonia Medical Research Foundation (DMRF) call 312-755-0198 or visit https://dystonia-foundation.org.

Jessica Feeley
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