2nd Dystonia Warrior Ride Brings Awareness to Debilitating Brain Disorder

Dystonia is Third Most Common Movement Disorder but Frequently Misdiagnosed
Dystonia is the 3rd most common movement disorder.
Dystonia is the 3rd most common movement disorder.
WOODSTOCK, Ill. - Sept. 1, 2022 - PRLog -- Tracey Deyoung is on a mission to raise awareness and research funds for dystonia, a little-known movement disorder. Deyoung is diagnosed with cervical dystonia which causes powerful, involuntary muscle contractions in the neck. In Deyoung's honor, Better Halves and the Fat Bastards motorcycle group are hosting the 2nd Dystonia Warrior Ride to benefit the Dystonia Medical Research Foundation (DMRF) on Saturday, September 24, 2022, beginning at 10:00 am at Woodstock Harley Davidson (2235 S. Eastwood Dr, Woodstock, IL 60098) and ending at Long Shots Sports Pub (615 IL-120, Lakemoor, IL 60051). September is Dystonia Awareness Month.

Deyoung has lived with dystonia for 14 years. Prior to being diagnosed, doctors incorrectly suspected she might have multiple sclerosis, ALS (amyotrophic lateral sclerosis), or Huntington's disease. "A lot of people don't know what dystonia is," said Deyoung, "and I want to do everything I can to increase awareness. I want to thank Better Halves and the Fat Bastards—without them this event and the awareness we're sharing wouldn't be possible."

The Dystonia Warrior Ride offers multiple registration levels ranging from $10-$35. Participants visit checkpoints in northern Illinois and southern Wisconsin. The event concludes with an after party including refreshments, music, and dystonia awareness activities. The event website is: https://dystonia-foundation.org/warrior-ride/

Dystonia is a chronic, often disabling, neurological disorder marked by excessive, involuntary muscle contractions that cause abnormal body motions and postures. Estimates suggest dystonia affects 250,000 Americans of all ages. Up to 70% are initially misdiagnosed. Common signs include abnormal neck movements, excessive blinking, a breathy or strangled-sounding voice, muscle contractions and tightness in the hand, and/or a twisted foot. Although there is not yet a cure, treatment options and support resources are available.

The Dystonia Medical Research Foundation (DMRF) is the leading dystonia patient advocacy organization, serving 50,000+ people annually. Since 1976, DMRF has funded groundbreaking dystonia research, increased public awareness, and offered resources to affected individuals and families. More information is available at: https://dystonia-foundation.org or 800-377-DYST (3978).

Jessica Feeley
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