Rockin' for a Dystonia Cure is July 14

Syosset Residents Bring Visibility to Disabling Brain Disorder
Dystonia is the 3rd most common movement disorder.
Dystonia is the 3rd most common movement disorder.
HUNTINGTON, N.Y. - June 1, 2022 - PRLog -- Robin and Marc Miller are hosting the 9th Annual "Rockin' for a Cure" on Thursday, July 14, 2022 from 6:00-10:00pm at Harbor Club at Prime (95 New York Avenue, Huntington, NY 11743). An evening of music, entertainment, food, and drink will support the Cure Dystonia Now Fund of the Dystonia Medical Research Foundation (DMRF). Tickets are $250 before June 27 and $275 thereafter. Event sponsors include Allergan, an AbbVie Company; Reliance First Capital; and Command Direct.

"We are so thankful to all those who help support this incredibly important cause that is near and dear to our hearts, affecting both our daughter and my husband," said Mrs. Miller.

"Living with dystonia firsthand between my daughter and myself as well as having had the honor of speaking to so many people—young and old, from all walks of life—whose lives are impacted by this movement disorder every day, drives us to do our part to help raise money to fund research, advocacy, and support. We look forward to the day that we all put the DMRF out of business by finding a cure," added Mr. Miller.

The Millers joined the DMRF Board of Directors in February of 2022. Both are graduates of Emory University's Goizueta Business School undergraduate program, where they met as students studying finance. Mrs. Miller worked at Anderson Consulting (n/k/a Accenture).  She later obtained a master's degree in physical therapy from Columbia University and worked with developmentally delayed children and orthopedics. Mr. Miller attended Fordham University School of Law and has been working as an attorney the past 30 years. Prior to joining the DMRF, the Millers were active dystonia advocates for 10+ years through their non-profit Cure Dystonia Now, raising in excess of $1 million for research.

Dystonia is a chronic, often disabling, neurological disorder marked by excessive muscle contractions that cause involuntary body motions and postures. Estimates suggest dystonia affects 250,000 Americans and millions worldwide. Up to 70% of individuals are misdiagnosed due to a lack of awareness, even among medical professionals. Common signs include abnormal movements or positions of the head, neck pain, excessive blinking, a breathy or strangled-sounding voice, hand cramps, or a twisted foot. Although there is not yet a cure, treatment options include oral medications, botulinum neurotoxin injections, and deep brain stimulation.

The Dystonia Medical Research Foundation (DMRF) is the leading dystonia patient advocacy organization. Founded in 1976, the DMRF mission is to advance research toward improved treatments and a cure, promote education and awareness, and provide support resources to affected individuals and families. The DMRF can be reached at or 800-377-DYST (3978).

Jessica Feeley
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