MEDIA ALERT: National Tay-Sachs & Allied Diseases Association Hosts 34th Annual Family Conference

April 18, 2012 - PRLog -- WHAT: In a year that promises to deliver great advances in research and education for families and friends of those afflicted with children’s genetic diseases of the brain, the National Tay-Sachs and Allied Diseases Association (NTSAD) is once again hosting its annual family conference.  Conference will include: updates on recent research findings, findings from scientists working towards a cure, support group sessions, and practical information and tips on how to raise a child with Tay-Sachs or another related disease.
WHO:  More than 300 people and 75-plus families from around the world will come together at the 34th Annual Family Conference.

WHERE:  Caribe Royale, 8101 World Center Drive, Orlando, FL 32821

WHEN: Thursday, April 19 – Sunday, April 22, 2012,

“The NTSAD Family Conference has always been about the families of those affected with life-threatening genetic diseases,” said Sue Kahn, Executive Director of the NTSAD. “The four-day event is designed to give families updates on research findings, practical advice on how to  care for infants to adults affected by these diseases, support from mental health professionals as well as those families who have been in a similar situation, and most importantly – hope.”

To learn more about the 34th Annual NTSAD Family Conference or to attend, please visit http://www.ntsad.org/index.php/general-information.

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About NTSAD
National Tay-Sachs & Allied Diseases Association (NTSAD) is one of the oldest patient advocacy groups in the country. The organization focuses on funding research, supporting over 500 families and individuals worldwide, and raising awareness to prevent disease. Today, NTSAD is recognized as a leading non-profit patient group with a demonstrated commitment to service, science and support. NTSAD gives help and hope to thousands of individuals and families from many backgrounds and ethnicities affected by Tay-Sachs, Canavan and related genetic diseases all over the world. The programs and services offered by the NTSAD include: Family Services, Research, Education and Advocacy. Learn more at www.NTSAD.org.