If you are POLISH or HUNGARIAN Ezra needs your help...
Ezra is 2 years old and loves the alphabet, music and his tricycle. Ezra has a rare primary immune deficiency disorder called Hyper IgM Syndrome and is in need of a bone marrow transplant to survive.
What are the symptoms of hyper-IgM syndrome?
Infants usually develop recurring upper and lower respiratory infections within the first year of life. Other signs of the disease include enlarged tonsils, liver, and spleen, chronic diarrhea, and an increased risk of unusual or opportunistic infections and non-Hodgkin's lymphoma.
How is hyper-IgM syndrome treated?
Patients receive injections of intravenous immunoglobulin (IVIG) every three or four weeks. For neutropenia, patients can take G-CSF, a protein that stimulates the body to produce more granulocytes. Their doctor may also prescribe antibiotics to prevent the lung disease, Pneumocystis carinii pneumonia.
Join the Gift of Life Bone Marrow Registry - www.giftoflife.org (use code Match4Ezra)
If you are unable to register, TELL YOUR FRIENDS TO DO IT!
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We are one of the nation's public bone marrow, blood stem cell and umbilical cord blood registries. A world leader facilitating transplants for children and adults suffering from life-threatening diseases. Our vision is simple: A match. Anytime. Anywhere.