Valutivity LLC Launches Tryptasemia.com
Company near Richmond, VA, launches website to propel recognition of a relatively new condition, Hereditary Alpha Tryptasemia Syndrome.
By: Valutivity LLC
diagnoses, useless—or worse, damaging—medications, and negative psychological impacts.
A local company, Valutivity LLC, in Mechanicsville, Virginia, is working to close that knowledge gap. In 2018, its owner, Karen Smith-Will, discovered she and several family members have HαTS. Groundbreaking doctors leading them on this journey include electrophysiologist Dr. Daniel Schneider, of Virginia Cardiovascular Specialists;
One year ago, at the end of January 2020, Valutivity LLC rolled out Tryptasemia.com (http://www.Tryptasemia.com and .org), to coincide with Rare Day events in DC and at the NIH, in Bethesda, Maryland.
HαTS has the dubious distinction of running the gambit of exceedingly common and presumed-benign symptoms, such as headache, abdominal pain, fibromyalgia, and fainting. Yet it is often paired with rarer and riskier symptoms like anaphylaxis, cardiac block, hypermobility and vibratory urticaria. A genetic tweak on chromosome 16 results in a person having multiple copies of TPSAB1. Functionally, this results in higher amounts of a protein called tryptase in one's white blood cells. HαTS is multi-systemic;
Valutivity LLC has participated in advocacy efforts since 2017, conferences since 2019, and educational/
Valutivity LLC (http://www.valutivity.com) was founded in 2009 by Karen Smith-Will to guide organizations to convert activity into measurable value that aligns with their vision. Valutivity is about coaching, consulting and connecting, focused on leadership, process engineering and change management. Its sister company, The
Consulting Arts, is a catalyst for creativity in musical, visual and literary arts.
Karen Smith-Will, MSL, CLSS