Moms Champion Annual Day at Zoo to Bring Awareness to Rare Disorder
7th Cincinnati Dystonia Zoo Walk Supports Research for a Cure
Ann Falci's teenage daughter Marianne was diagnosed with dystonia at age 10 after four years of seeking answers. It began with a tremor in her hand when she was five. At her 10th birthday party, her hands tremored so much she could not peel the paper from a cupcake. By that time she was having tremors and loss of muscle control in her arm and legs. Once diagnosed with dystonia, a prescribed medication dramatically reduced her symptoms within a week. The Falci family have been members of the DMRF since 2015.
Dystonia is a chronic, often disabling, neurological disorder marked by involuntary movements and abnormal postures of the body and limbs. Common dystonia symptoms include abnormal head and neck movements, excessive blinking, a breathy or strangled-sounding voice, hand cramps, and/or a twisted foot. Dystonia can affect a specific part of the body or many muscles all over the body.
The Dystonia Medical Research Foundation (www.dystonia-
WHAT: Cincinnati is one of 13 cities to host a Dystonia Zoo Walk in 2019. Zoo Walks attract 5,000+ participants nationally. The purpose of this family-friendly day at the zoo is to raise awareness of dystonia and funds for medical research toward a cure. Fees are $25 for adults /$15 for children (12 and under) and include zoo admission, refreshments, and t-shirt. Proceeds benefit the Dystonia Medical Research Foundation. September is Dystonia Awareness Month.
WHERE: Cincinnati Zoo & Botanical Garden, Peacock Pavilion, 3400 Vine St, Cincinnati, OH 45220.
WHEN: Saturday, September 21, 2019. Registration opens at 7:45am. Event begins at 9:00 am.
MORE INFO: Visit https://cincinnatidystoniazoowalk.swell.gives/