Day at Roger Williams Park Zoo Supports Dystonia Research for a Cure

Providence Dystonia Zoo Walk is September 14; Brain Disorder is Little-Known but Surprisingly Common
 
 
Dystonia causes involuntary movements and postures of the body and limbs.
Dystonia causes involuntary movements and postures of the body and limbs.
 
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PROVIDENCE, R.I. - Sept. 9, 2019 - PRLog -- Sue Baron of Smithfield, Beth Paolero of Portsmouth, and Paula Schneider of Hamden (CT) are on a mission to raise awareness of dystonia, the disabling neurological disorder. Baron's 23-year-old son Bryan was diagnosed with dystonia in his teens, and the family established the first-ever dystonia support group in Rhode Island. Paolero's daughter Maddie, also in her 20s, uses a wheelchair for mobility, and has difficulty speaking and writing due to the severity of her dystonia symptoms. The Paoleros presented Senator Jack Reed with a distinguished service award on behalf of the Dystonia Advocacy Network. Schneider was diagnosed with dystonia in 1990, at the height of her career in radio. All three patients have undergone a neurosurgical procedure called deep brain stimulation to treat the dystonia symptoms. The families are collaborating with additional local volunteers to bring greater visibility to dystonia and the need for medical research toward a cure.

Dystonia is characterized by twisting, repetitive muscle movements as well as sustained, abnormal postures of the body and limbs. There are many manifestations of dystonia that impact people of all ages and backgrounds. Conservative estimates suggest no fewer than 250,000 Americans are affected.  The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.

WHAT: Providence is one of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. Last year, Zoo Walks drew 5,000+ participants nationally. The purpose of this community day at the zoo is to raise dystonia awareness and funds for medical research. Proceeds benefit the Dystonia Medical Research Foundation. Cost is $25 per adult and $15 for children under 12. Fee includes all day admission to the zoo, dystonia t-shirt, and refreshments. September is Dystonia Awareness Month.

WHEN: Saturday, September 14, 2019. Registration opens at 8:00 AM. Event begins at 9:30 AM.

WHERE: Roger Williams Park Zoo, 1000 Elmwood Ave, Providence, RI 02907 - Marco Polo Plaza

MORE INFO: https://providencedystoniazoowalk.swell.gives/

Contact
Jessica Feeley
***@dystonia-foundation.org
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