Day at Zoo Supports Dystonia Research for a Cure

Annual Pittsburgh Dystonia Zoo Walk Takes Place September 8; Neurological Disorder is Little-Known but Surprisingly Common
 
 
September is Dystonia Awareness Month
September is Dystonia Awareness Month
 
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Dystonia

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Event

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Pittsburgh - Pennsylvania - US

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Events

PITTSBURGH - Aug. 29, 2019 - PRLog -- The Burgh is one of 13 cities hosting a Dystonia Zoo Walk in 2019. Last year, Zoo Walks in a dozen cities drew over 5,000 participants. The Pittsburgh Dystonia Zoo Walk is a family-friendly community day at the Zoo to raise awareness about dystonia, a chronic brain disorder that robs people of the ability to control their body movements. September is Dystonia Awareness Month.

Dystonia is characterized by excessive, involuntary muscle contractions that result in twisting, repetitive movements and abnormal postures of the body and limbs. There are many manifestations of dystonia that impact people of all ages and backgrounds. Conservative estimates suggest 250,000 Americans are affected. Dystonia Zoo Walks offer a "twist" on traditional charity walks with no required walking course or expectation other than enjoying a morning at the zoo among fellow patients, friends, and family.

Proceeds benefit the Dystonia Medical Research Foundation. Cost is $25 per adult and $15 for children 12 and under. Fee includes all day zoo admission, dystonia t-shirt, and refreshments.

WHEN: Sunday, September 8. Registration opens at 9:00 am. Event begins at 10:00 am.

WHERE: Pittsburgh Zoo & PPG Aquarium - Garden Tent, 7370 Baker St, Pittsburgh, PA 15206.

WHO: The event is organized by members of the Western Pennsylvania Dystonia Support Group. When event co-organizer Ed Cwalinski had deep brain stimulation surgery 19 years ago, in a desperate attempt to control his relentless body spasms, he was the youngest person with dystonia to have the procedure. Co-organizer MaryRae Nee also underwent deep brain stimulation 17 years ago to control her severe dystonia. Chris Mack, Co-Host of The Fan Morning Show on 93.7 The Fan, and wife Tara Sorley are organizing a Zoo Walk team in honor of their 6-year-old son Braden who suffers from dystonia. Special guest speaker is Mary Flaherty, DO, Neurologist with Allegheny Health Network.

MORE INFO:  Visit https://pittsburghdystoniazoowalk.swell.gives/

Contact
Jessica Feeley
***@dystonia-foundation.org
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