Mom Organizes Annual Day at Zoo to Bring Awareness to Daughters' Rare Disorder
6th Cincinnati Dystonia Zoo Walk Supports Research for a Cure
Dystonia is a chronic, often disabling, neurological disorder marked by involuntary movements and abnormal postures of the body and limbs. There are numerous manifestations of dystonia that impact people of all ages and backgrounds. The Phelps girls were born with tyrosine hydroxylase deficiency, a rare metabolic disease that causes generalized dystonia. They experience painful muscle spasms in their limbs, hands, feet, neck, face, and tongue as well as complications affecting their respiratory and gastrointestinal systems.
The Dystonia Medical Research Foundation (www.dystonia-
Cincinnati is one of 13 cities in the US to host a Dystonia Zoo Walk in 2018. Last year, Zoo Walks in 12 cities drew over 5,000+ participants. The purpose of this family-friendly day at the zoo is to raise awareness of dystonia and funds for medical research toward a cure. Fees are $25 for adults /$15 for children (12 and under) and include zoo admission, refreshments, and t-shirt. There will be games, face painting, door prizes, and special guests. Proceeds benefit the Dystonia Medical Research Foundation. September is Dystonia Awareness Month.
WHERE: Cincinnati Zoo & Botanical Garden, Peacock Pavilion, 3400 Vine St, Cincinnati, OH 45220.
WHEN: Saturday, September 8, 2018. Rain or shine. Registration opens at 7:45am. Event begins at 9:00 am.
MEDIA: To schedule interviews and for more information, contact Melissa Phelps at 859-643-0104 or visit https://www.dystonia-
Dystonia Medical Research Foundation