DMRF Board Member Hosts 2nd Dystonia Bronx Zoo Walk Weeks after Deep Brain Stimulation SurgeryEvent Attracts 400+ Supporters to Raise Dystonia Awareness & Research Funds
"The Bronx Zoo Walk is a shining example of the spirit of our community and offered an incredible display of unity with dystonia patients, doctors, researchers, medical staff, and our friends and families, joining together to raise awareness and celebrate our hope for a cure," says Sloate, who developed dystonia in childhood. Teams at the Bronx Zoo Walk represented local families impacted by dystonia as well as prominent healthcare institutions: Dystonia is a chronic brain disorder that causes uncontrollable muscle spasms that twist the body into involuntary movements and painful postures. There is not yet a cure. Treatment options include oral medications, botulinum toxin injections, and neurosurgical procedures such as deep brain stimulation. Sloate has lived with generalized dystonia affecting her limbs and speech for 40+ years. Her involuntary movements complicate the simplest tasks, from speaking on the phone to walking across a room. This week she will have a second brain surgery and then, in a third procedure, neurosurgeons will implant neurostimulators in her chest and connect them to the electrodes in her brain. It may take up to a year for the benefits of the therapy to be fully realized. In addition to serving on the DMRF Board of Directors, Sloate leads a dystonia support group at Mount Sinai Beth Israel and authors the blog, Chronicles of a Dystonia Muse. The Dystonia Medical Research Foundation (DMRF) is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia- End
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