Poland Syndrome Documentary Connecting The Medical Community And People Worldwide

Aug. 14, 2012 - PRLog -- A Message Of Hope And Strength

A child is born with this affliction every one to two weeks. Parents have no where to go. Young adults struggle with the physical differences brought by Poland Syndrome. Our documentary will connect people who've struggled with Poland Syndrome and the medical industry to present facts and create hope!

FACT: Only 12% of medical personal are aware of the birth defect Poland Syndrome!

As one could imagine, a global film production of this magnitude takes considerable proper planning. The production has a magnificent crew, Doctors who specialize in Poland Syndrome and one Doctor who has the PS condition.  People living around the world, from ages seven to sixty-seven, lined up to tell their story of living with and helping those with Poland Syndrome.

We hear from people all the time, with and without Poland Syndrome to tell us how their lives are are affected, their want to be involved with and their praise for the Poland Syndrome Documentary.

I met an amazing person affected by Poland symdrome. She was a music teacher. She taught my kids that with hard work and passion one can overcome any challenge, and that is, perhaps the most valuable lesson a teacher can teach. Maria Serena Lo Piccolo.

My son is 7 years old and is missing his left major pectoral muscle and is missing phlanges in three fingers on left hand and index and thumb are webbed a little bit...Bryan is a very active boy, he plays basketball, baseball and did play soccer. If interested in talking with us, please contact me. Rockland, MA

I am 57 and I am very interested in telling my story. I have 3 children and 6 grandchildren (none with PS), Thank you, Deana. Everett, WA

Come and interview Gregg and I and meet The Blakester!! He's the 2 yr little man with the plan. Louisville Ky

My 9 yr old daughter was Hope was born with Poland Syndrome, we did not know she had it until delivery. She was born with a heart murmur, a claw like hand with no recognizable fingers. Would love to help. Maryland

Hi, my name is Kris, I am a 37 year old, single father of two teenagers, with P.S. on my left side. I think it’s wonderful that the world might be able to understand our condition a little bit better now. Myrtle Beach, S.C.

My daughter is 10 and is left side affected. She has a mild case but has no pec muscle, one impacted finger, and her whole left upper body is smaller in comparison to her right. I spoke with her and we are interested in helping if you still need families/kids to speak with. We live in Ohio.

Our son is 2 1/2 and was finally diagnosed around 7 months with Polands. His ribs didnt grow the way they were supposed to and I also can see his heart beating and feel it beat because the only thing there is skin. I worry about his future as a little boy. He can not play in contact sports and I feel bad. Please whatever we may do to help, Danielle England

I am now 62 and I was born with PS. It affected my left hand, my left chest, ribs & part of my back. I have had corrective surgery to my hand & chest but little could be done. England

I was born in 1966 in Germany and I would love to help. At birth my right pec was missing, along with a considerable amount of breast tissue. PS had never really prevented me from doing the things I wanted to do in my life. I believe PS affects people in so far as they allow it to affect them. Ursula Ireland

Hope was born with Poland Syndrome; her parents did not know she had it until delivery. She has had to deal with a lot of difficult situations over the years. Some times it will be just a curious kid asking questions and sometimes it is teasing and bullying. Hope goes through times where she covers up her arm around people or in pictures, and then there are times when she is proud of her hand and shows it off.

Lastly, I received an email that touched my soul and is the very essence of why the Poland Syndrome Documentary was begun.

The Email:

Good day,

My baby girl, Lika, was born with Poland Syndrome in February this year. I do not know of anyone else in South Africa that suffers from this condition. Any information and help will be appreciated!

Thank you!

Kind regards / Vriendelike

I need to help, we need to help Vriendelike and others like her that have nowhere to go...It is time to connect the global dots, medically and personally utilizing the Poland Syndrome Documentary.  Woody Bavota,

http://www.polandsyndromedocumentary.com/