Hope
I think it would be cool for Zoe to see when she is older, she is left hand affected. Jennifer Tyngsboro, Ma
I am 57 and I am very interested in telling my story. I have 3 children and 6 grandchildren (none with PS), Thank you, Deana. Everett, WA
Come and interview Gregg and I and meet The Blakester!! He's the 2 yr little man with the plan. Louisville Ky
My 9 yr old daughter Hope was born with Poland Syndrome, we did not know she had it until delivery. She was born with a heart murmur, a claw like hand with no recognizable fingers. Would love to help. Maryland
Hi, my name is Kris, I am a 37 year old, single father of two teenagers, with P.S. on my left side. I think it’s wonderful that the world might be able to understand our condition a little bit better now. Myrtle Beach, S.C.
My daughter is 10 and is left side affected. She has a mild case but has no pec muscle, one impacted finger, and her whole left upper body is smaller in comparison to her right. I spoke with her and we are interested in helping if you still need families/kids to speak with. We live in Ohio.
Our son is 2 1/2 and was finally diagnosed around 7 months with Polands. His ribs didnt grow the way they were supposed to and I also can see his heart beating and feel it beat because the only thing there is skin. I worry about his future as a little boy. He can not play in contact sports and I feel bad. Please whatever we may do to help, Danielle England
I am now 62 and I was born with PS. It affected my left hand, my left chest, ribs & part of my back. I have had corrective surgery to my hand & chest but little could be done. England
I was born in 1966 in Germany and I would love to help. At birth my right pec was missing, along with a considerable amount of breast tissue. PS had never really prevented me from doing the things I wanted to do in my life. I believe PS affects people in so far as they allow it to affect them. Ursula Ireland
http://www.polandsyndromedocumentary.com
Photo:
http://www.prlog.org/
