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Poland Syndrome Documentary Interviews Underway

We have just begun our search and our video interviews are now underway in MA, with the parents of two children affected and with one child. Interviews with adults and children affected are now arranged around the US, in England and Ireland.

 
 
Hope
Hope
PRLog - Jul. 31, 2012 - BOURNE, Mass. -- My son is 7 years old and is missing his left major pectoral muscle and is missing phlanges in three fingers on left hand and index and thumb are webbed a little bit...Bryan is a very active boy, he plays basketball, baseball and did play soccer. If interested in talking with us, please contact me. Rockland, MA

I think it would be cool for Zoe to see when she is older, she is left hand affected. Jennifer Tyngsboro, Ma

I am 57 and I am very interested in telling my story. I have 3 children and 6 grandchildren (none with PS), Thank you, Deana. Everett, WA

Come and interview Gregg and I and meet The Blakester!! He's the 2 yr little man with the plan. Louisville Ky

My 9 yr old daughter Hope was born with Poland Syndrome, we did not know she had it until delivery. She was born with a heart murmur, a claw like hand with no recognizable fingers. Would love to help. Maryland

Hi, my name is Kris, I am a 37 year old, single father of two teenagers, with P.S. on my left side. I think it’s wonderful that the world might be able to understand our condition a little bit better now. Myrtle Beach, S.C.

My daughter is 10 and is left side affected. She has a mild case but has no pec muscle, one impacted finger, and her whole left upper body is smaller in comparison to her right. I spoke with her and we are interested in helping if you still need families/kids to speak with. We live in Ohio.

Our son is 2 1/2 and was finally diagnosed around 7 months with Polands. His ribs didnt grow the way they were supposed to and I also can see his heart beating and feel it beat because the only thing there is skin. I worry about his future as a little boy. He can not play in contact sports and I feel bad. Please whatever we may do to help, Danielle England

I am now 62 and I was born with PS. It affected my left hand, my left chest, ribs & part of my back. I have had corrective surgery to my hand & chest but little could be done. England

I was born in 1966 in Germany and I would love to help. At birth my right pec was missing, along with a considerable amount of breast tissue. PS had never really prevented me from doing the things I wanted to do in my life. I believe PS affects people in so far as they allow it to affect them. Ursula Ireland

http://www.polandsyndromedocumentary.com

Photo:
http://www.prlog.org/11938233/1

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Contact Email:
***@wvsglobal.com Email Verified
Source:WVS Global
Phone:508-392-9524
Zip:02534
Location:Bourne - Massachusetts - United States
Industry:Movies
Tags:Poland Syndrome, hand, ribs, pectoral, documentary
Last Updated:Jul 31, 2012
Shortcut:prlog.org/11938233
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