With the heartfelt mission of using music as a vehicle to comfort, create community and contribute to rare disease research, Harmony 4 Hope (http://www.harmony4hope.org/)
"From the moment of Bridget's diagnosis in 2009, I’ve felt compelled to contribute to this cause in some way,” noted Hughes. “Music has always moved my soul; and so I looked for a way to unite my passion for music with a greater purpose to help Bridget and other kids like her. I’m happy to be teaming up with Cures Within Reach to raise awareness for Bridget and families battling a rare disease.”
Cures Within Reach is a 501(c)3 non-profit organization based in Skokie, IL, whose mission is to save lives through research to repurpose existing drugs and devices to find effective treatments for diseases affecting underserved patient populations. This research model is much faster and less expensive than what is used to conduct traditional drug research. More than $200,000 has been committed to research projects for a treatment or cure for Batten disease working with Cures Within Reach through its Hope4Bridget Fund (http://www.cureswithinreach.org/
“Donations to these funds are supporting research projects to repurpose existing drugs to find a treatment or cure, and to find blood biomarkers for this disease as a foundation for evaluating treatment efficacy, as well as creating an online patient registry for clinicians, patients and caregivers,”
Much of this research is funded in conjunction with the Batten Disease Support and Research Association, and other small non-profits joining in the battle against Batten disease.
Cures Within Reach