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October 2019
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12773367
By International Pemphigus & Pemphigoid Foundation
The Sy Syms Foundation has awarded a $100,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the IPPF's Biopsies Save Live Campaign.
By SMi Group Ltd
SMi reports: Invitation from conference co-chair released for the 9th Annual Orphan Drugs & Rare Diseases conference, taking place in London this October
By Cure SMA
Cutting-edge clinical data registry will help drive improvements in care for the leading genetic cause of death for infants under two years of age.
12723365
By International Pemphigus & Pemphigoid Foundation
Continued funding to support dental education, outreach, and awareness of pemphigus and pemphigoid, two rare autoimmune diseases.
By Icla da Silva Foundation
7 year old Veronica Depauli was recently diagnosed with a rare form of osteopetrosis. She is searching for a matching bone marrow donor.
12720763
By 83bar LLC
-- Fully integrated initiative to further CENTOGENE's reach in U.S.
By Partners4Access
As part of its business expansion activities, Partners4Access' Sophie Schmitz will be attending industry group, BioIndustry Association (BIA)'s Summer Networking Reception on Thursday, July 12.
12713892
By Aldevron
Aldevron, a leading global provider of plasmid DNA and mRNA manufacturing, protein production and antibody discovery services, and Odylia, a nonprofit organization working to develop treatments for ultra-rare ocular diseases using gene therapy, have...
12711732
By Project Alive
Donation in honor of Hunter Syndrome advocate Simon Ibell who passed away in 2017 at the age of 39 due to complications from Hunter Syndrome
By Project Alive
Last month, nonprofit Project Alive began a campaign called #15byMay15 to raise the remaining $1.5 million needed to fund a clinical drug trial for the rare disease Hunter Syndrome / MPS II that could begin as early as this summer.
By Aldevron
Area organizations Aldevron, Sanford Health, and North Dakota State University (NDSU) have joined forces to bring together a special event titled, "From the Valley to the Mountain: The RARE Impact of the Red River Valley," on Wednesday, April 11 from...
By Encephalitis Global
As World Encephalitis Day approaches on February 22nd we remind others that they are not alone.
By Cure SPG47
Angel donor steps up to match $100,000 in research donations
12682890
By Project Alive
Vector Production and Active IND Meet Major Milestones in Foundation-Scientists Collaboration to Develop an Experimental Therapy for Young Boys with a Rare Dementia-Like Disease
12680617
By Project Alive
Families Are Making A Cure A Reality for the Rare Disease Hunter Syndrome / MPS II

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