Click to Share
 

Filter News
Show All Results
News By Country
News By Tag
Rare Disease Remove


July 2016
TuMoSuSaFrThWe
26252423222120

Public Company News

Business Press Releases

Rare Disease Press Releases

+ Alert
+ Feed
Exclusive News
Topics Locations Industries Dates

By International Pemphigus & Pemphigoid Foundation
Grant to Support Successful Early Diagnosis Awareness Campaign
By HAEi
Week of activities includes largest number of HAE patients walking the Camino de Santiago and largest HAE patient conference ever held
12554233
By Saving Case & Friends, Inc.
Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition
By EPG Health Media (Europe) Ltd
epgonline.org, the website for healthcare professionals, has today announced the launch of a new educational resource for lysosomal acid lipase (LAL) deficiency.
12544304
By Saving Case & Friends, Inc.
"Alive" Focuses on Son's Fight Against Terminal Disease Called Hunter Syndrome
12537361
By The Charlotte and Gwenyth Gray Foundation
Devastating, rare neurodegenerative disease leaves all children blind, immobile, cognitively impaired and eventually dead between the ages of six and 12 The Charlotte & Gwenyth Gray Foundation’s Cure Batten T-Shirt Campaign runs through March 4th to...
12474216
By Project Alive, a campaign of Saving Case & Friends
Parents of children with the rare disease Hunter Syndrome launched a compelling awareness and fundraising campaign with celebrity support including Seattle Seahawks head coach Pete Carroll and radio host Dave Ramsey.
By Boston Biotech Clinical Research
Strategic Clinical Innovation Organization (SCIO) Recognized for Third Straight Year
12409141
By MSA Awareness
The world's foremost researcher of Multiple System Atrophy (MSA), a rare, neurodegenerative disease that is always fatal, has had a review of the history of MSA progression and research published in the renowned New England Journal of Medicine.
By Cholangiocarcinoma Foundation
This story will resonate with anyone facing a cancer diagnosis or other life-altering event.
By International Pemphigus Pemphigoid Foundation
The public is invited to show their support at the California State Capitol on February 27, 2104 for the millions of people affected by rare diseases living around the world, across the county, and down the street.
By Cures Within Reach
In recognition of the 7th Annual Rare Disease Day on February 28, two Chicago-area nonprofit organizations are joining forces by repurposing music and medicine to raise awareness of rare diseases through a grassroots campaign to help children.
12101685
By Cures Within Reach
Understanding Drug Development will be the second webcast in the RARE Webinar Series providing relevant information to patients and caregivers battling rare diseases, which are defined as diseases that affect fewer than 200,000 people in the US and...
12024592
By CADASIL Association
CADASIL is one of approximately 7,000 rare diseases affecting 30 million Americans. CADASIL is now listed at the National Multiple Sclerosis Society as a condition a doctor needs to rule out before diagnosing a patient with MS.
11998446
By SavingCase
The Fowler family recently relocated to the Chicago area to get specialized medical treatment for their son with Hunter Syndrome. Filmmaker Joey Howell will film them as a part of his documentary at Lurie Children's Hospital on October 16/17.
11976758
By SavingCase
To learn how to raise more awareness of and funding for research about her son's rare disease, Hunter Syndrome, mom Melissa Hogan wrote a moving essay to win a scholarship to the Mayo Clinic's Social Media Week events.
By Alto Marketing
Customer and company experts to discuss identifying causative mutations using arrays and sequencing
By ASHA Public Relations, LLC
NBIA Disorders Association will join the National Organization for Rare Disorders in observing Rare Disease Day on Wed., Feb. 29 to focus attention on patients affected by rare diseases, like Neurodegeneration with Brain Iron Accumulation (NBIA)

All Press Releases

By International Pemphigus & Pemphigoid Foundation
Grant to Support Successful Early Diagnosis Awareness Campaign
By HAEi
Week of activities includes largest number of HAE patients walking the Camino de Santiago and largest HAE patient conference ever held
12554233
By Saving Case & Friends, Inc.
Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition
By EPG Health Media (Europe) Ltd
epgonline.org, the website for healthcare professionals, has today announced the launch of a new educational resource for lysosomal acid lipase (LAL) deficiency.
12544304
By Saving Case & Friends, Inc.
"Alive" Focuses on Son's Fight Against Terminal Disease Called Hunter Syndrome
12537361
By The Charlotte and Gwenyth Gray Foundation
Devastating, rare neurodegenerative disease leaves all children blind, immobile, cognitively impaired and eventually dead between the ages of six and 12 The Charlotte & Gwenyth Gray Foundation’s Cure Batten T-Shirt Campaign runs through March 4th to...
By epgonline.org
A new online medical education resource has launched this week on epgonline.org, the website for healthcare professionals.
By SMi Group
SMi Group reports (2015.07.20 – London, UK): Infusion Pharma Consulting, Rare Disease UK, Pfizer and GSK to present at the 4th annual Orphan Drugs and Rare Diseases Conference in London
12474216
By Project Alive, a campaign of Saving Case & Friends
Parents of children with the rare disease Hunter Syndrome launched a compelling awareness and fundraising campaign with celebrity support including Seattle Seahawks head coach Pete Carroll and radio host Dave Ramsey.
By Boston Biotech Clinical Research
Strategic Clinical Innovation Organization (SCIO) Recognized for Third Straight Year
By Roots Analysis
The report provides a comprehensive study of the pipeline drugs being developed for rare diseases by several top pharmaceutical firms.
By Siren Interactive
In honor of Rare Disease Day 2015, Siren Interactive, a Dohmen Company, has released an infographic that explains how rare disease communities are playing a leadership role in the development of precision medicine, a trend which will have a profound...
12409141
By MSA Awareness
The world's foremost researcher of Multiple System Atrophy (MSA), a rare, neurodegenerative disease that is always fatal, has had a review of the history of MSA progression and research published in the renowned New England Journal of Medicine.
By CF "LA BEAUTY"
Ukrainian Breakthrough: The Unified registry of patients with pulmonary hypertension which will help to reveal real number of patients, provide timely data transmission about patients, help to plan & control is created in Ukraine.
By Cholangiocarcinoma Foundation
This story will resonate with anyone facing a cancer diagnosis or other life-altering event.
By Siren Interactive
Chicago, IL (April 10, 2014)—Wendy White, Founder and CEO of Siren Interactive, will conduct a pre-conference workshop entitled Critical Issues in Patient Advocacy Engagement & Collaboration: How Do We Find Common Ground? at the World Orphan Drug...
By Siren Interactive
Siren Interactive Developed a Rare Disease Day infographic Focusing on the Struggle to Diagnosis Rare Diseases
By International Pemphigus Pemphigoid Foundation
The public is invited to show their support at the California State Capitol on February 27, 2104 for the millions of people affected by rare diseases living around the world, across the county, and down the street.
By Siren Interactive
MIT’s H@cking Medicine Program Will Deliver Technology Platform for Global Genes™ to Provide Novel Tools to Help Physicians Speed Diagnosis of Rare Disease Patients
By Cures Within Reach
In recognition of the 7th Annual Rare Disease Day on February 28, two Chicago-area nonprofit organizations are joining forces by repurposing music and medicine to raise awareness of rare diseases through a grassroots campaign to help children.
By Cures Within Reach
Batten Disease is a fatal, rare genetic disease affecting the nervous system and most often affecting children. Two families in the Chicago area touched by Batten are making a big difference in research through funds raised by their organizations.
12101685
By Cures Within Reach
Understanding Drug Development will be the second webcast in the RARE Webinar Series providing relevant information to patients and caregivers battling rare diseases, which are defined as diseases that affect fewer than 200,000 people in the US and...
By Cures Within Reach
Jasper Against Batten at Cures Within Reach, a 501(c)3 not-for-profit located in IL, is collaborating with an int'l coalition to fund “Global Gene Transfer for Batten Disease” research at the UNC Gene Therapy Center, announced Dr. Bruce Bloom.
By Cures Within Reach
Each year the designation of the final day of February as Rare Disease Day generates increased awareness of the 7,000-plus rare disorders and fuels a greater urgency to develop more treatments for rare disease patients.
12024592
By CADASIL Association
CADASIL is one of approximately 7,000 rare diseases affecting 30 million Americans. CADASIL is now listed at the National Multiple Sclerosis Society as a condition a doctor needs to rule out before diagnosing a patient with MS.
By www.creativebiomart.net
After years of development and repeated rejections, uniQure finally got permission to market its gene therapy—Glybera.
11998446
By SavingCase
The Fowler family recently relocated to the Chicago area to get specialized medical treatment for their son with Hunter Syndrome. Filmmaker Joey Howell will film them as a part of his documentary at Lurie Children's Hospital on October 16/17.
By Boys with Bigger Hearts
For the past year, documentary filmmaker Joey Howell has been filming a documentary called Boys with Bigger Hearts about the rare disease Hunter Syndrome. The project is raising funds via Kickstarter to finish the filming and production.
11976758
By SavingCase
To learn how to raise more awareness of and funding for research about her son's rare disease, Hunter Syndrome, mom Melissa Hogan wrote a moving essay to win a scholarship to the Mayo Clinic's Social Media Week events.
By Alto Marketing
Customer and company experts to discuss identifying causative mutations using arrays and sequencing

Page:
Page updated every 10 minutes


Like PRLog?
9K2K1K
Click to Share