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November 2017
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By Partners4Access
Partners4Access will attend the Festival of Genomics in Boston on October 3rd, 2017. Sophie Schmitz, Managing Partner at P4A will be there meeting representatives of the research and patient community as well as the pharmaceutical industry.
12654663
By Project Alive
Parents Trying to Help Fund a Cure For the Rare Disease Hunter Syndrome / MPS II
12648948
By Project Alive
Parent Efforts Bringing Awareness to the Rare Disease Hunter Syndrome / MPS II
12647385
By XpertDox
Healthcare data analytics firm XpertDox won the first prize of $50,000 in an entrepreneurial competition, Alabama Launchpad. The Economic Development Partnership of Alabama sponsored the 2017 Alabama Launchpad L.E.A.P.
12633926
By BrandStar
Recurring Segment for The Balancing Act Named Exclusive Media Sponsor for Event in Washington, D.C.
By Cures Within Reach
Cures Within Reach Seeks to Honor Repurposing in Rare Diseases
12597830
By Saving Case & Friends, Inc.
Parent-led fundraising efforts have donated over $500,000 to treat the rare disease Hunter Syndrome (MPS II)
By Hashimoto's Encephalopathy SREAT Alliance
HESA leads international rare disease awareness campaign August 15th through the 21st
By International Pemphigus & Pemphigoid Foundation
Grant to Support Successful Early Diagnosis Awareness Campaign
By HAEi
Week of activities includes largest number of HAE patients walking the Camino de Santiago and largest HAE patient conference ever held
12554233
By Saving Case & Friends, Inc.
Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition
By EPG Health Media (Europe) Ltd
epgonline.org, the website for healthcare professionals, has today announced the launch of a new educational resource for lysosomal acid lipase (LAL) deficiency.
12544304
By Saving Case & Friends, Inc.
"Alive" Focuses on Son's Fight Against Terminal Disease Called Hunter Syndrome
12537361
By The Charlotte and Gwenyth Gray Foundation
Devastating, rare neurodegenerative disease leaves all children blind, immobile, cognitively impaired and eventually dead between the ages of six and 12 The Charlotte & Gwenyth Gray Foundation’s Cure Batten T-Shirt Campaign runs through March 4th to...
12474216
By Project Alive, a campaign of Saving Case & Friends
Parents of children with the rare disease Hunter Syndrome launched a compelling awareness and fundraising campaign with celebrity support including Seattle Seahawks head coach Pete Carroll and radio host Dave Ramsey.
By Boston Biotech Clinical Research
Strategic Clinical Innovation Organization (SCIO) Recognized for Third Straight Year
12409141
By MSA Awareness
The world's foremost researcher of Multiple System Atrophy (MSA), a rare, neurodegenerative disease that is always fatal, has had a review of the history of MSA progression and research published in the renowned New England Journal of Medicine.
By Cholangiocarcinoma Foundation
This story will resonate with anyone facing a cancer diagnosis or other life-altering event.
By International Pemphigus Pemphigoid Foundation
The public is invited to show their support at the California State Capitol on February 27, 2104 for the millions of people affected by rare diseases living around the world, across the county, and down the street.
By Cures Within Reach
In recognition of the 7th Annual Rare Disease Day on February 28, two Chicago-area nonprofit organizations are joining forces by repurposing music and medicine to raise awareness of rare diseases through a grassroots campaign to help children.

All Press Releases

By Partners4Access
Partners4Access will attend the Festival of Genomics in Boston on October 3rd, 2017. Sophie Schmitz, Managing Partner at P4A will be there meeting representatives of the research and patient community as well as the pharmaceutical industry.
12654663
By Project Alive
Parents Trying to Help Fund a Cure For the Rare Disease Hunter Syndrome / MPS II
12648948
By Project Alive
Parent Efforts Bringing Awareness to the Rare Disease Hunter Syndrome / MPS II
12647385
By XpertDox
Healthcare data analytics firm XpertDox won the first prize of $50,000 in an entrepreneurial competition, Alabama Launchpad. The Economic Development Partnership of Alabama sponsored the 2017 Alabama Launchpad L.E.A.P.
12633926
By BrandStar
Recurring Segment for The Balancing Act Named Exclusive Media Sponsor for Event in Washington, D.C.
By Brandstar
The Balancing Act's Ongoing "Behind the Mystery: Rare and Genetic Diseases" Series Features Rare Disease Day Episode on February 28th Pompano Beach, FL--- One in every ten Americans suffers from a rare disease.
By Cures Within Reach
Cures Within Reach Seeks to Honor Repurposing in Rare Diseases
12597830
By Saving Case & Friends, Inc.
Parent-led fundraising efforts have donated over $500,000 to treat the rare disease Hunter Syndrome (MPS II)
By Wilson Disease Association
Local Family Affected by Wilson Disease Turns Tragedy Into Hope for Other Suffers of Rare Genetic Disorder
By Hashimoto's Encephalopathy SREAT Alliance
HESA leads international rare disease awareness campaign August 15th through the 21st
By International Pemphigus & Pemphigoid Foundation
Grant to Support Successful Early Diagnosis Awareness Campaign
By HAEi
Week of activities includes largest number of HAE patients walking the Camino de Santiago and largest HAE patient conference ever held
12554233
By Saving Case & Friends, Inc.
Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition
By EPG Health Media (Europe) Ltd
epgonline.org, the website for healthcare professionals, has today announced the launch of a new educational resource for lysosomal acid lipase (LAL) deficiency.
12544304
By Saving Case & Friends, Inc.
"Alive" Focuses on Son's Fight Against Terminal Disease Called Hunter Syndrome
12537361
By The Charlotte and Gwenyth Gray Foundation
Devastating, rare neurodegenerative disease leaves all children blind, immobile, cognitively impaired and eventually dead between the ages of six and 12 The Charlotte & Gwenyth Gray Foundation’s Cure Batten T-Shirt Campaign runs through March 4th to...
By epgonline.org
A new online medical education resource has launched this week on epgonline.org, the website for healthcare professionals.
By SMi Group
SMi Group reports (2015.07.20 – London, UK): Infusion Pharma Consulting, Rare Disease UK, Pfizer and GSK to present at the 4th annual Orphan Drugs and Rare Diseases Conference in London
12474216
By Project Alive, a campaign of Saving Case & Friends
Parents of children with the rare disease Hunter Syndrome launched a compelling awareness and fundraising campaign with celebrity support including Seattle Seahawks head coach Pete Carroll and radio host Dave Ramsey.
By Boston Biotech Clinical Research
Strategic Clinical Innovation Organization (SCIO) Recognized for Third Straight Year
By Roots Analysis
The report provides a comprehensive study of the pipeline drugs being developed for rare diseases by several top pharmaceutical firms.
By Siren Interactive
In honor of Rare Disease Day 2015, Siren Interactive, a Dohmen Company, has released an infographic that explains how rare disease communities are playing a leadership role in the development of precision medicine, a trend which will have a profound...
12409141
By MSA Awareness
The world's foremost researcher of Multiple System Atrophy (MSA), a rare, neurodegenerative disease that is always fatal, has had a review of the history of MSA progression and research published in the renowned New England Journal of Medicine.
By CF "LA BEAUTY"
Ukrainian Breakthrough: The Unified registry of patients with pulmonary hypertension which will help to reveal real number of patients, provide timely data transmission about patients, help to plan & control is created in Ukraine.
By Cholangiocarcinoma Foundation
This story will resonate with anyone facing a cancer diagnosis or other life-altering event.
By Siren Interactive
Chicago, IL (April 10, 2014)—Wendy White, Founder and CEO of Siren Interactive, will conduct a pre-conference workshop entitled Critical Issues in Patient Advocacy Engagement & Collaboration: How Do We Find Common Ground? at the World Orphan Drug...
By Siren Interactive
Siren Interactive Developed a Rare Disease Day infographic Focusing on the Struggle to Diagnosis Rare Diseases
By International Pemphigus Pemphigoid Foundation
The public is invited to show their support at the California State Capitol on February 27, 2104 for the millions of people affected by rare diseases living around the world, across the county, and down the street.
By Siren Interactive
MIT’s H@cking Medicine Program Will Deliver Technology Platform for Global Genes™ to Provide Novel Tools to Help Physicians Speed Diagnosis of Rare Disease Patients
By Cures Within Reach
In recognition of the 7th Annual Rare Disease Day on February 28, two Chicago-area nonprofit organizations are joining forces by repurposing music and medicine to raise awareness of rare diseases through a grassroots campaign to help children.

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