A Global Voice for Autism Launches AWAREdata.info

WASHINGTON - March 28, 2025 - PRLog -- A Global Voice for Autism is proud to announce the launch of AWAREdata.info, an open-source platform designed to enhance autism data collection, analysis, and policymaking worldwide. Autism Worldwide Analytics & Reporting Ecosystem (AWARE (http://www.awaredata.info/)) will be developed on District Health Information System 2 (DHIS2) and will be freely available to governments and NGOs working to improve services for children with autism and other disabilities.

With a growing global need for reliable autism data, AWARE provides a standardized, secure, and accessible platform to collect, visualize, and share autism-related data. The tool can be used online, on a mobile app, and offline, making it ideal for rural and remote settings. The tool is being piloted in a few countries in collaboration with local governments and partners working with children with disabilities.

AWARE Supports Global Commitments to Autism & Disability Rights as it aligns with key international resolutions and frameworks, including:

• UN Convention on the Rights of Persons with Disabilities (CRPD) – Advocating for the rights and inclusion of people with autism.
• UN Resolution 62/139 – Calling for global action to raise autism awareness and improve service access.
• World Health Organization (WHO) Resolution EB133.R4 – Urging coordinated data collection and policy responses to autism.

A Collaborative & Open-Source Approach

AWAREdata.info will be free, ensuring stakeholders can use the tool to drive evidence-based policies.
The platform includes:

• A user-friendly dashboard for real-time data visualization
• Role-based access controls to ensure data privacy
• Joint ownership of data between participating NGOs and governments
• A scalable system to expand autism data collection globally

"Easily accessible, reliable screening and case management tools are key to identifying and ensuring that children with autism receive the services and support they need," said Dr. Nagesh N. Borse, Executive Director of A Global Voice for Autism. "AWARE is a game-changer for autism data collection, and we invite governments, NGOs, and funders to join us in this effort."

A Call to Action:
Governments, NGOs, funders, and researchers are invited to partner with us to scale AWARE globally. Together, we can close the data gaps and improve outcomes for children with autism everywhere.

About A Global Voice for Autism
Founded in 2013, A Global Voice for Autism is a non-profit organization dedicated to empowering communities with evidence-based resources and advocacy to support autistic children and their families. The organization works across low- and middle-income countries to provide training, tools, and policy support to improve access to education, healthcare, and inclusive services.

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