Heterotaxy Connection Announces Heterotaxy Awareness Day 2021
"We are thrilled to announce the 8th annual Heterotaxy Awareness Day," said Necia Sabin, President and Co-Founder of Heterotaxy Connection. The awareness day theme for this year is 'Moving Forward, Growing Together.' "The year of 2020 made a dramatic impact across the globe. 2020 also had a unique influence on our community, increasing the sense of isolation that is already inherent in families who have been touched by a relatively unknown medical condition. This year, we look to carry on as a community, holding both heartache and hope with us as we move forward. As we do this, we are committed to building a stronger and more connected organization."
In 2020, the organization celebrated Heterotaxy Awareness Day by sharing perspectives of what heterotaxy looks like through the eyes of various members of their community. In 2021, Heterotaxy Connection looks forward to continue raising awareness while simultaneously focusing on fostering connection within the community.
Founded in 2014, Heterotaxy Connection is committed to providing families with the support they need while walking the hard road of heterotaxy. A major goal of the organization in 2021 is to offer new strategies for bringing families together, in a time when so many feel alone.
"This year, we plan to offer structured, virtual platforms for connecting families across the world where we can reach our new families, reunite with our established families, and continue honoring our heterotaxy angels." said Sabin. "We are dedicated to building relationships between heterotaxy families so that no family is alone on their heterotaxy journey. 2021 will be an innovative year for our organization."
About Heterotaxy Connection: Heterotaxy Connection is a registered 501(c)3 non-profit dedicated to supporting, educating, and empowering families affected by heterotaxy syndrome. We connect families with resources and with each other. Heterotaxy syndrome is a congenital condition that results in internal organs being misplaced, malformed, multiplied, or missing. The causes of heterotaxy syndrome are not fully understood. Individuals with heterotaxy syndrome require lifelong multidisciplinary care and medical monitoring. Visit https://www.heterotaxyconnection.org/