Virtual Dystonia Zoo Day is September 12, 2020
Patients and Families Unite Online to Raise Awareness and Research Funds for Little-Known Brain Disorder
By: Dystoina Medical Research Foundation
"DMRF is bringing the fun and energy of our Dystonia Zoo Walks to a virtual stage so people and families from all over the country can join together in the fight for a cure," said Ronald Hersh, DMRF's Vice President of Development. "The health and safety of the dystonia community has always been at the heart of the DMRF mission." Hersh and his wife June honored their adult daughter Allison London by supporting "Ali's ZooGooders,"
Virtual Dystonia Zoo Day will begin with a livestreamed kick-off at 11:00 AM Central Time (USA). Scheduled sessions throughout the day include a live zoo keeper chat with Toledo Zoo & Aquarium, a behind-the-scenes demonstration with dystonia investigators at Yale University, an adapted yoga and mindfulness class, Q&A with top movement disorder experts, children's activities, and sing-a-long with guitarist/composer Billy McLaughlin.
Signing up for the event is free and participants can support the DMRF by purchasing an event t-shirt, making a donation, or becoming a "ZooGooder" sponsor. 100% of donations (up to $50,000) will be matched a generous anonymous donor.
National Sponsors are Allergan, an AbbVie Company; Merz; and Ipsen.
Dystonia is a chronic, often disabling, brain disorder marked by extreme, involuntary muscle contractions that cause abnormal body movements and postures. Common signs include abnormal movements of the head and neck, excessive blinking, a breathy or choking voice, hand cramps, or a twisted foot. Because dystonia is not better known, symptoms are often mistaken for mental illness, substance abuse, or poor social skills. Dystonia impacts people of all ages and backgrounds. There is currently no cure, and though treatments exist there is no single therapy that benefits even a majority of patients.
The Dystonia Medical Research Foundation (DMRF) is the leading dystonia patient advocacy organization. Founded in 1976, the DMRF mission is to advance dystonia research toward improved treatments and a cure, promote education and awareness, and provide support resources to affected individuals and families. The DMRF can be reached at www.dystonia-