April Awareness Month For Sjogren's Syndrome

By: SJOGREN EUROPE
 
BRUSSELS - May 1, 2020 - PRLog -- Conquering the complexities of Sjögren's Syndrome

April is Sjögren's Awareness Month and with many people suffering from Sjögren's, both men and women of different ages and ethnicities, Sjögren's is one of the most prevalent but still lesser-known autoimmune diseases. It is also not a "cookie-cutter" disease and affects patients differently. Many symptoms are also referred to as invisible because you cannot see someone's profound fatigue or when the disease has advanced to his/her internal organs. This can lead to a misunderstanding about the seriousness of the disease and be extremely isolating for those living with it.

Sjögren's Syndrome is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound fatigue, chronic pain, major organ involvement, neuropathies, and lymphomas.

As a systemic disease, affecting the entire body, symptoms may remain steady or worsen over time. There is no one single progression of the disease and this can make it challenging for patients and their physicians. While some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatments are important as they may prevent serious complications and greatly improve a patient's quality of life.

About half of the time Sjögren's occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease such as Rheumatoid Arthritis, Lupus, or Scleroderma.

Sjögren's Awareness Month was first established in 1998 by the US Sjögren's Foundation aiming to keep the spirit of national awareness alive and now, during a time of increased stress and anxiety because of the coronavirus/COVID-19, it is even more important says Alice Grosjean, President of Sjögren Europe.

On this occasion, Sjögren Europe launched an awareness campaign on social media sharing clear, simple and detailed infographics about emblematic and overlooked symptoms of Sjögren's.

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About Sjögren Europe

The idea of Sjögren Europe emerged in April 2018 in Washington D.C. during the International Sjögren's Syndrome Symposium (ISSS) and the decision to materialize it was launched during the EULAR congress in Amsterdam in June 2018. This new and great adventure is a wonderful opportunity to merge the voices, perspectives and needs of patient communities from different countries at European level and to bring a ray of hope to patients with Sjögren's Syndrome. This is Sjögren Europe's mission: working together and be a partner to all stakeholders of the sector in order to build a better future for patients with Sjögren's Syndrome.

For more information: https://www.sjogreneurope.org

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