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Follow on Google News | Haverhill Man Selected to Represent Dystonia Community to CongressDystonia Advocates Gather in Washington to Bring Visibility to Little-Known Brain Disorder
Individuals who are affected by dystonia struggle against their own bodies to walk, write, sit, eat, and/or speak. The nervous system is hijacked by chaotic signals that instruct muscles to contract excessively, causing involuntary, uncontrollable movements and sustained, abnormal postures in the body and limbs. Wood was inspired to action when a family member was diagnosed with dystonia several years after developing Parkinson's disease. "I have seen firsthand how tough dystonia can be to deal with. This cause is near and dear to my heart," says Wood. "This is a terrible disease that we must increase awareness for and find a way to increase research funding to find different treatments and ultimately a cure." Wood has long been involved in advocating on behalf of Parkinson's disease patients, partnering with the National Parkinson Disease Foundation and Michael J Fox Foundation. Because dystonia is not better known, the symptoms are frequently mistaken for mental illness, intoxication, or bad manners. Patients often suffer profound social anxiety and/or depression, frequently withdrawing from social situations. Despite frequent misdiagnosis, dystonia is more common than Huntington's disease, muscular dystrophy, and Lou Gehrig's disease (ALS). There are multiple forms of dystonia that impact people of all ages and backgrounds. There is currently no cure, and though treatments exist there is no single therapy that benefits even a majority of patients. The Dystonia Medical Research Foundation (DMRF) is the leading dystonia patient advocacy organization. The DMRF can be reached at 800-377-3978, dystonia@dystonia- End
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