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National Hemochromatosis Awareness Month
Jason Edwards, the founder of HIS, is excited about this public awareness campaign. "Access to information concerning the symptoms, diagnosis, and treatment of hereditary hemochromatosis by rural communities is limited. I think this campaign will greatly increase awareness of hemochromatosis in rural communities,"
Founded in August 2003, The Hemochromatosis Information Society (HIS) is a nonprofit organization whose mission is to promote public awareness about the genetic disorder hereditary hemochromatosis. HIS helps inform the public about the existence and prevalence of hemochromatosis and the related dangers of iron overload. We strive to reduce the number of health problems and deaths associated with hemochromatosis. In essence, we work to save lives by informing the public.
Hemochromatosis is a genetic disorder in which the human body accumulates excess amounts of iron. Hemochromatosis is inherited and is not contagious. The over accumulation of iron may result in serious adverse health effects, including arthritis, cirrhosis of the liver, diabetes, heart disease, and liver cancer. HIS maintains a website www.hemoinfo.org, as an avenue to disseminate information concerning hereditary hemochromatosis. In addition, HIS has developed a database containing the names and locations of facilities that offer services to patients. This information is made available to the general public via the website.