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Follow on Google News | Sage Bionetworks Redefines Framework of Patient Data Sharing Through Release of mPowerBy: Sage Bionetworks John Wilbanks, Chief Commons Officer at Sage Bionetworks, will be sharing this case study at Arrowhead's 8th Annual Personalized & Precision Medicine Conference on October 12-13, 2016 in San Francisco. By developing an electronic consent process which enables participants to determine their individual data-sharing preferences, Sage Bionetworks addressed any misconceptions that patients' information will be shared broadly and without their consent. They also allowed patients to change their data-sharing setting at any time during the study. That being said, more than 75% of the participants who qualified and consented decided to share their data broadly. After ensuring transparency, the research team was then able to collect self-reported outcomes and qualitative sensor data, which were shared for secondary analysis. In return, Sage Bionetworks excluded commercial resale, marketing uses and re-identification of data donors. Therefore, by prioritizing transparency and emphasizing return of information, mPower was able to redefine how patient data sharing studies are conducted. For more information, visit: http://go.nature.com/ With several key thought leaders such as John Wilbanks, presiding attendees will gain valuable insight into a variety of crucial factors in the field of precision and personalized medicine. For more information, download a brochure at: http://personalizedmedicinepartnerships.com. For more information, contact: John Waslif: Managing Director Arrowhead Publishers 866-945-0263 ext. 700 John.waslif@ Rachel Donlon: Marketing Associate Arrowhead Publishers 866-945-0263 ext. 701 End
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