Rare Disease Foundation Wins Multiple Awards For Creative Video And Song Awareness Campaigns
Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition
By: Saving Case & Friends, Inc.
Hunter Syndrome is a rare, genetic condition that affects approximately 2,000 people worldwide, almost exclusively young boys, causing progressive loss of physical, mental, and behavioral function. The average life span for someone with the most common, severe form of the disease is in the early teens. Through Project Alive, SC&F is sharing about the symptoms, diagnosis, and prognosis of Hunter Syndrome and how the public can help fund research toward a cure for the devastating disease.
The 37th annual Telly Award committee and the Silver Telly Council judged the entries. "The Telly Awards has a mission to honor the very best in film and video," said Linda Day, Executive Director of the Telly Awards. "Saving Case & Friends' accomplishment illustrates their creativity, skill, and dedication to their craft and serves as a testament to great film and video production."
The President of SC&F, Melissa Hogan, also recently received an Honorable Mention in the Country category for her song "Alive" from the prestigious International Songwriting Competition (ISC). The song was written in conjunction with the Project Alive campaign along with acclaimed songwriter Mark Irwin, known for Grammy nominated "Highway Don't Care" and other number one hits. The song proclaims: "I want to live my life, grow into a man / I want to watch my mom grow old and hold her hand / I want to be alive." The song and its powerful lyric video can be viewed at bit.ly/singalive.
With over 18,000 entries and judged by musical artists such as Kesha, Moby, and Eric Paslay and A/R executives at major labels like Epic, Sony, and Capital Records, the ISC is in its 15th year and has the most prestigious panel of judges of all the songwriting contests and music contests in the world.
Through the Project Alive campaign, Saving Case & Friends has raised over $125,000 in the last year earmarked for gene therapy research in an effort to cure Hunter Syndrome. Hogan notes, "So many viewers of our Project Alive video and 'Alive' song lyric video reached out to us about how these efforts impacted them. They learned about a disease they'd never heard of, supported our efforts, and shared the videos with so many others." The lyric video for the "Alive" song was viewed over 150,000 times on social media.
To find out more about the Telly Awards, visit www.tellyawards.com. To find out more about the International Songwriting Competition, visit www.songwritingcompetition.com.
Incorporated in 2014, SC&F is a leading Hunter Syndrome research and advocacy foundation, raising awareness of Hunter Syndrome globally, funding curative research for the disease, and advocating for patients and families affected by Hunter Syndrome. For more information, visit SavingCase.com.