Crown Point, IN Mother Recognized For Role In Fight Against Rett Syndrome
Mimi has spearheaded an incredible amount of awareness in her local community as well as raised awareness nationwide through her social media efforts. She leads with compassion and resilience. Mimi has jumped from high heights, built parade floats, organized awareness events, and been a source of support day or night for other families. The award, an engraved crystal vase, was presented in person to Mimi in Orlando, FL, on February 20, 2016, at the Team GP2C Disney Princess Half Marathon Team Dinner.
Mimi shares, "My biggest passion is for raising awareness for Rett Syndrome, and those who suffer from it. I love meeting new families, connecting with those who have walked this path before me, and helping newly diagnosed families find a connection and a place for HOPE. This (Rett) journey can often be a dark, frightening place. Girl Power 2 Cure helps shine a bright light on an otherwise often dark diagnosis. With the help and support from Girl Power 2 Cure, I have been given a platform to be the voice for others. Sophia and Emma are my motivation, and the biggest reason I have to fight for and educate others about Rett Syndrome. I don't enjoy running. I'm not always comfortable public speaking or putting our family in the spotlight. However, when your WHY is big enough, you find your HOW. They are my why. They are my reason to be better, to do more, and to make a difference. I am honored to be awarded the 2015 Super Hero of the Year, and am looking forward to many more opportunities to teach our community about Rett, and to bring local Rett families together."
Ingrid Harding, Girl Power 2 Cure, Inc. Founder-President, says, "We are honored to have Mimi battling side by side with us. Her passion is as genuine as it is contagious. Despite being a full-time caregiver for Sophia and spending endless hours in various doctor's offices and hospitals, Mimi squeezes out every last drop of energy to educate and share the story of Rett Syndrome. We believe the future is bright for Sophia, Emma and the hundreds of thousands of other girls and women battling Rett Syndrome. We have funded over $1 million in research and helped support hundreds of families nationwide through the outstanding efforts of people like Mimi and communities like Crown Point."
About Rett Syndrome
Rett Syndrome is a severe neurological disorder that almost exclusively affects females. Every 90 minutes another little girl is born "normal," only to be robbed of her ability to speak, walk, crawl, and use her hands between the ages of 1 and 3. Complications include seizures, sudden death in their sleep and scoliosis.
Rett Syndrome is caused by a single spontaneous gene mutation that any baby girl has an equal chance of acquiring. It is considered one of the most physically disabling neurological disorders and is as prevalent as Cystic Fibrosis, ALS and Huntington's Disease. There is no treatment, but in 2007 researchers proved in the lab that Rett Syndrome can be reversed, giving it the potential to be the first curable neurological disorder and playing a key role in understanding other neurological disorders such as Alzheimer's, Schizophrenia and Parkinson's.
About Girl Power 2 Cure, Inc.
Girl Power 2 Cure, Inc. is a 501c3 nonprofit organization dedicated to providing family support and education, raising awareness and funds for treatments and a cure for Rett Syndrome, a devastating neurological disorder that almost exclusively affects girls. We are committed to making Rett Syndrome the first reversible neurological disorder. We support families and volunteers in the planning and implementation of events that raise awareness and funds for Rett Syndrome research, as well as support Rett families with resources, fundraising help and education and awareness tools.
Our inspiration is our flower - always in bloom with hope and positive energy, ready to grow anywhere there is someone ready to join our mission. For more information, visit us at www.girlpower2cure.org.
Ingrid Harding, Founder-President
Girl Power 2 Cure, Inc.
Page Updated Last on: Mar 02, 2016