New Memoir Spotlights Ultra-Orphan Disorder Epidermolysis Bullosa

LANCASTER, Calif. - April 17, 2015 - PRLog -- Silvia Corradin, long time advocate for her son’s rare disorder Epidermolysis Bullosa (EB), lifts the vail in the hopes of raising awareness for her son’s condition and opening up about the devastating stillbirth that preceded his birth. Her new Book “Butterfly Child: A Mother’s Journey” describes in detail the past 20 years of her life, from the devastating news of her baby’s wound demise at full term, followed by a miscarriage, to the birth and journey dealing with her new baby’s diagnosis, a rare, fatal disorder of which Doctors were baffled on how to deal with.

Silvia Corradin was a Special Need columnist and has published three prior books featuring her columns and stories of families dealing with EB. She founded the EB Info World website in 1997 (www.ebinfoworld.com) when she realized there was hardly any information about her son’s disorder on the web. Readers of her books have expressed great enthusiasm for the project and the potential for awareness.

“Butterfly Child” is now available everywhere.

Visit http://www.butterflychildamothersjourney.com for contact details, review copies, photos, and an author bio.