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Florida Resiliency Expert Brings Patient Perspective to International Lupus Task Force
Defining disease remission in lupus for better patient outcomes, Florida woman appointed to international task force at its first meeting Zurich, Switzerland
Former head of a large nonprofit and past Chair of the Lupus Foundation of America’s National Board of Directors, Coney is widely recognized for her work in health education and specifically her pioneering work in resiliency. As a professional speaker and educator, she travels extensively sharing her first-hand patient perspective and professional expertise with thousands, delivering inspirational keynote speeches and educational training to patient and healthcare organizations worldwide, and acting as a patient advisor to pharmaceutical companies and research groups.
“I was deeply honored to accept the nomination to serve on this task force,” she said. “Patients bring a unique perspective to the conversation about disease management and treatment. My intention is always to speak on behalf of all patients—to act as a liaison in bringing their voices to the table to create meaningful conversations as we collectively work to achieve a common understanding of what it means to be in remission with a chronic disease that currently has no cure.” A proponent of patient-centered care, which supports a collaborative patient-physician partnership in decision making for patient treatment options and goals, Coney added that “including patients in the discussion reflects the commitment of the medical community to understanding and meeting patient needs.”
Coney, who has testified before the FDA Advisory Panel in support of the lupus drug Benlysta and been selected three times to serve alongside doctors and researchers as a Department of Defense Patient Reviewer for the Peer Reviewed Medical Research Program, will be the keynote speaker at the American College of Rheumatology-
Today, patient input is being made a top priority in education, treatment, research and clinical practice. For patients living with a chronic disease such as lupus, Coney is a passionate and articular voice in these efforts.
For more information visit http://www.CindyConey.com.
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