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A young woman's battle with a rare disease
New book release telling the story of a young woman with a rare disease and her battle to live a normal life and become a mother
My name is Barry Forshaw and I have written a book that details my wife’s battle with a rare autoimmune disease. It is called Alicia: My Battle with Wegener’s Disease.
It has been almost 10 years since my wife Alicia was diagnosed with Wegener’s Granulomatosis. She took a battery of drugs and even underwent chemotherapy that didn’t work. At the last moment her life was saved by an experimental drug called Rituximab. Alicia relapsed twice, and since that second flare Alicia has been in ‘remission’
According to the National Health Service around 500 people each year are diagnosed with Wegener’s Disease in the UK alone. It is estimated to affect 3 out of every 100,000 people globally. Men and woman are equally at risk, but the disease rarely attacks children. The most common age to be diagnosed with Wegener’s is in your forties or fifties.
I have tried to achieve three things with the book.
The first is to explain what the disease is, how it is diagnosed and how it can be treated.
The second is to raise awareness of this terrible disease, and vasculitis disease in general.
The third, and more importantly, I wanted to tell Alicia's story. I think it would be a great, inspiring read for anyone suffering with a chronic illness.
It is appropriate that the book is being released now as May is Vasculitis Awareness Month. The aim is to raise awareness of all of these rarely diagnosed diseases, of which Wegener’s Disease is one.
You can buy the book on Amazon for Kindle (It can be read on any phone, tablet or computer using the Kindle app). Here is the link to the UK version: http://www.amazon.co.uk/
The book costs £6.11.
You can find out more about Wegener’s Granulomatosis by visiting my website www.wegenersdisease.co.uk
Alicia Forshaw is a Registrar at Newcastle City Council, registering births, marriages and deaths. I am Barry Forshaw, Alicia’s husband and I wrote the book. I was the Superintendent Registrar at Newcastle City Council and conducted over 2000 weddings. I left work in 2013 to help look after my daughter and spend more time writing and on photography.
For media enquiries please contact Barry Forshaw at barry.forshaw@