New book another milestone in one man’s quest to cure rare disease
Professor Gregor Wenning has one mission in life: to find a cure for Multiple System Atrophy. To many this would seem like a mission impossible. How does one even hope to cure such a complex neurodegenerative disease? Especially one that so far has confounded all attempts to completely understand its cause, or to slow the relentless onslaught of symptoms that rapidly renders victims unable to walk, swallow, speak and breathe.
By: Multiple System Atrophy Awareness
Aimed at medical students, neurologists and basic neuroscientists this book will serve to fill a gap in the curriculum of medical schools who currently give very little attention to this devastating neurodegenerative disease despite it being as common as the more well-known but similar Lou Gehrig's Disease or ALS.
“It is my hope that with this book clinicians will become more aware and this will translate to better recognition and diagnosis of the disease much earlier in patients,” says Wenning.
"Most physicians and medical support staff have never heard of Multiple System Atrophy," says Cathy Rapenport whose husband Marvin, a former policeman, currently suffers from the disease, "This is extremely frustrating for patients and families seeking answers and medical intervention. Prof. Wenning's book is a blessing to the MSA and medical communities. This gives us hope”.
All profits back to research
Not only does Prof. Wenning want to achieve his mission to cure Multiple System Atrophy, he will be putting his own money to work to do it. He has pledged to donate all personal proceeds from his book back to the MSA research effort at the Medical University of Innsbruck where he has established an elite team of researchers focused exclusively on Multiple System Atrophy. His lab at the Division of Neurobiology is also the hub of the newly created Movement Disorder Society MSA Study Group (MoDiMSA-SG).
This new worldwide collaborative network led by Wenning, unites researchers from around the world who have all taken on the challenge to work together on uncovering the cause which will lead to a cure for Multiple System Atrophy.
"My colleagues and I are serious about wanting to find viable treatments and ultimately a cure for this disease." says Wenning. “It would be inconceivable that I make a profit from this book, it must be used for the greater good.”
"I am overjoyed that Prof. Wenning is doing this," says Cathy Rapenport, "It shows he truly has a personal interest in finding a cure for MSA. How many researchers invest their own money in what they believe?”
Professor Gregor Wenning is available for media interviews, please contact author to arrange.
To find out more about Multiple System Atrophy please go to www.MSAawareness.org
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More about Professor Gregor Wenning
Prof. Wenning is at the forefront of research on the rare and life limiting neurodegenerative disease, Multiple System Atrophy. He heads the Division of Neurobiology at the Medical University of Innsbruck Austria. He co-founded the European MSA Study Group in 1999. He is chair of the Movement Disorder Society MSA Study Group, a newly formed worldwide network for MSA researchers. He can be contacted via his website.www.i-med.ac.at/
About the Multiple System Atrophy Awareness movement
Through the website www.MSAawareness.org and the annual March MSA Awareness month campaign, the goal is to forge connections worldwide to bring the MSA community together, sharing information and resources while raising the profile of the disease and encouraging fundraising for Multiple System Atrophy research.
Page Updated Last on: Jan 04, 2015