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Midwest Child & Family Institute’s Sickle Cell Conference Highlighted Community Resources, Study
Cure for Sickle Cell, Stem Cell Transplantation, Was Also Discussed
During the conference, members of the medical, academic, and not-for-profit fields met to present and discuss issues impacting those with sickle cell, a genetic disorder which causes sickling of the hemoglobin in the red blood cells. More than 4 million people in the United States and more than 300 million people worldwide have the Sickle Cell Trait. Like SCT, Sickle Cell Disease also affects millions of people throughout the world and the trait and disease are common among those whose ancestors came from sub-Saharan Africa; Spanish-speaking regions in the Western Hemisphere (South America, the Caribbean, and Central America); Saudi Arabia; India; and Mediterranean countries such as Turkey, Greece, and Italy.
Highlights of the MC&FI’s 2013 conference included:
• A PowerPoint presentation by Dr. Lewis Hsu, M.D., Ph.D., director of Pediatrics, University of Illinois Hospital & Health Systems, Sickle Cell Center, on current medical treatments for those with sickle cell, including Stem Cell Transplantation which cures sickle cell;
• A presentation by Dr. Lorena Madrigal, Ph.D. professor of anthropology, University of South Florida, on a National Collegiate Athletic Association-
• A presentation by Tamiko Brooks, a health care administration expert and the program coordinator, Newborn Screening Department, of the Sickle Cell Disease Association of Illinois. Brooks discussed the history of the SCDAI and its community outreach programs such as its free Hemoglobin Screening Program, a collaborative effort with the University of Illinois at Chicago Sickle Cell Center, which tests individuals for SCT or the disease; its Bright Horizons Summer Camp Program for children ages 7 to 18; its Toy Drive & Holiday Celebration for children 0 to 17; and its annual Walk-Jog-Bike-
The MC&FI’s conference is held annually during late Spring/early Summer or more frequently based on demand. This year, the conference was sponsored by the SCDAI and was intended to educate the community and professionals on the latest advances in the treatment of sickle cell, community outreach programs and services offered by not-for-profit entities such as the SCDAI, and leading research studies in the field.
Individuals and organizations seeking to attend, speak, and sponsor the MC&FI’s 2014 conference should visit this site, www.midwestchild.com/
About the Midwest Child & Family Institute
The Midwest Child & Family Institute provides research, information, and technology solutions to child welfare professionals. We also host educational workshops and seminars on health issues and provide training and development on a range of topics, including but not limited to, service delivery and accreditation and licensing standards. Some of our clients rely on us for Department of Children and Family Services’ audit preparedness and workflow analysis and re-engineering.
About the Comprehensive Sickle Cell Center at the University of Illinois Hospital & Health Sciences System
The University of Illinois Hospital & Health Sciences System has been a pioneer of sickle cell research and treatment for more than 50 years. The hospital was actually the first in the Midwest to perform a successful stem cell transplant to cure sickle cell disease without chemotherapy. To learn more about the Comprehensive Sickle Cell Center, visit http://hospital.uillinois.edu/
About Dr. Lewis Hsu, M.D., Ph.D.
Dr. Lewis Hsu is the director of the Sickle Cell Center and clinical professor of Pediatrics at the University of Illinois Hospital & Health Systems. Dr. Hsu has led similar pediatric sickle cell programs at Emory University, St. Christopher's Hospital for Children, and Children's National Medical Center. His clinical and translational research experience includes, but is not limited to, sickle cell stroke prevention and bone marrow transplantation. He is also the author of more than 50 peer-reviewed medical papers and a co-author of Hilton Publishing’s No. 1 best-selling book, "Hope and Destiny Jr.: The Adolescent’s Guide to Sickle Cell Diseases.” Currently, “Hope and Destiny” is the only comprehensive, culturally sensitive book on sickle cell disease on the market and is available by contacting Daniel at dderoussseau@
About the Sickle Cell Disease Association of Illinois
The Sickle Cell Disease Association of Illinois, formerly known as the Midwest Association for Sickle Cell Anemia (MASCA), was organized as a community-based organization in 1971. The SCDAI is an advocate for improved health care and services for sickle cell patients and educates the community through its outreach programs, services, and fundraisers. To learn more about the SCDAI, visit www.scdai.org. Also, support the SCDAI’s 39th annual Walk-Jog-Bike-
About the University of South Florida’s NCAA-Funded Study on College Football Players with Sickle Cell Trait
The University of South Florida is conducting a research study funded by the National Collegiate Athletic Association on college football players with the Sickle Cell Trait. The study seeks to determine how genes that surround the SCT gene may affect the health of those with SCT. To learn more about the study or participate, visit http://health.usf.edu/