Nov. 1, 2012
-- FLANDERS, NJ, NOVEMBER 1, 2012: I had watched the movie “Under Our Skin” and it gave me hope, enlightenment, and made me realize I am not alone and this is not in my head. I have been “diagnosed”
with everything from: MS, migraines, hypertension, Trigeminal Neuralgia, to the doctor “finding the bacteria” Ehricliosis…
to then depression, anxiety, stress, TMJ, Chronic Fatigue Syndrome, arthritis, and the latest being Fibromyalgia.
One of my doctors had stated, the bacteria was gone after a month of antibiotics, so “we are no longer dealing with Ehricliosis”
. My doctor then went on to state, “I need to see a psychiatrist”
. I was sad, I cried, and thought how is this pain in my head? I hurt.
I went from the occasional knee pain, to suddenly my elbows hurting, my shoulders hurting, my ribs killing me, my fingers hurt and feel like I have paper cuts in them, and my ankles and feet hurting where I can barely stand on them. Today, I can barely walk because my legs just won’t stop shaking. Nights I awaken because I am sweating a tremendous amount, but then I am freezing cold. The past two nights I have been waking up because my right side will not stop shaking. I have very vivid nightmares, and my right side of my face is back to being numb again. Parts of my body go numb a lot. When taking a shower, it feels like I am being hit by stones. Now, I can honestly say I am stressed, but prior I did not feel like I was. I loved my job. I was always happy to go to work to meet new clients and help them. Now I fear not being able to use my hands.
I am tired. I am terribly sad I cannot work now. I was a massage therapist, and miss helping people. There are tons of days I cannot get out of bed anymore to even play with my daughter. It is heart breaking.
My body shut down on February 13, 2012. I was in tremendous pain with my face. Finally, I went to the hospital where I was diagnosed with Trigeminal Neuralgia. Which then later after many weeks of blood testing and seeing false negatives, I learned I had Lyme Disease and Ehrichliosis. We have no idea how long this has been affecting my system, but it has damaged my nerves, my heart, my brain. Since then it seems my body just went downhill.
My rheumatologist says there is absolutely no way these symptoms happened over night like that. And my cardiologist says, I have never been to the Midwest, so I am not dealing with Lyme or even Ehricliosis. It makes me sad, and I was feeling it was all in my head until a friend referred me to watch "Under Our Skin". Now I am reaching out to anyone I possibly can to enlighten them the truths about Lyme Disease and its coinfections.
After "relapsing" the eighth time, my doctor "admitted" I still have the Lyme and it is not something I can just "shake". Each time my body collapses, I go back on antibiotics. It is frustrating. I went from a healthy young woman, to now taking 30 pills a day and can barely even walk. I try to stay positive. Some days the pain hurts so much I just feel hopeless but I make it through. Thankfully, today I am no longer 100% "bedridden,"
I can move about, but there are days when I am stuck in bed. I am glad I am having more good days than bad. It is amazing what a tick can do to your body!