News By Tag
News By Location
Poland Syndrome Documentary Interviews Underway
We have just begun our search and our video interviews are now underway in MA, with the parents of two children affected and with one child. Interviews with adults and children affected are now arranged around the US, in England and Ireland.
I think it would be cool for Zoe to see when she is older, she is left hand affected. Jennifer Tyngsboro, Ma
I am 57 and I am very interested in telling my story. I have 3 children and 6 grandchildren (none with PS), Thank you, Deana. Everett, WA
Come and interview Gregg and I and meet The Blakester!! He's the 2 yr little man with the plan. Louisville Ky
My 9 yr old daughter Hope was born with Poland Syndrome, we did not know she had it until delivery. She was born with a heart murmur, a claw like hand with no recognizable fingers. Would love to help. Maryland
Hi, my name is Kris, I am a 37 year old, single father of two teenagers, with P.S. on my left side. I think it’s wonderful that the world might be able to understand our condition a little bit better now. Myrtle Beach, S.C.
My daughter is 10 and is left side affected. She has a mild case but has no pec muscle, one impacted finger, and her whole left upper body is smaller in comparison to her right. I spoke with her and we are interested in helping if you still need families/kids to speak with. We live in Ohio.
Our son is 2 1/2 and was finally diagnosed around 7 months with Polands. His ribs didnt grow the way they were supposed to and I also can see his heart beating and feel it beat because the only thing there is skin. I worry about his future as a little boy. He can not play in contact sports and I feel bad. Please whatever we may do to help, Danielle England
I am now 62 and I was born with PS. It affected my left hand, my left chest, ribs & part of my back. I have had corrective surgery to my hand & chest but little could be done. England
I was born in 1966 in Germany and I would love to help. At birth my right pec was missing, along with a considerable amount of breast tissue. PS had never really prevented me from doing the things I wanted to do in my life. I believe PS affects people in so far as they allow it to affect them. Ursula Ireland
Page Updated Last on: Jul 31, 2012