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Follow on Google News | Fighting Back Podcast Interviews Retiring NORD PresidentFighting Back, the podcast that tells inspirational stories about people fighting serious or incurable diseases, announces that the latest episode features an interview with the retiring president of the National Organization for Rare Disorders.
By: Steve Mullen / Fight SMA In the latest episode of Fighting Back, the podcast that tells inspirational stories of people fighting serious or incurable diseases, Ms. Meyers discusses her career as the leader of NORD, how she plans to continue her fight, and where she thinks the organization is going in the next 10 years. Fighting Back is produced for Fight SMA and its program, FighterMom. Fight SMA is an international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy, the leading genetic killer of children under two. FighterMom is a program designed to help any mother who has become a disease advocate, fighting against a serious disease affecting her child. “Abbey Meyers is an amazing woman, and we thank her for the work she’s done for the orphan disease community,” said Martha Slay, president of Fight SMA. “We’ To listen to Fighting Back, you can visit Fight SMA's Spinal Muscular Atrophy Blog (http://www.fightsma.org/ About Fight SMA Headquartered in Richmond, Virginia, Fight SMA (also known as Andrew's Buddies) is an international nonprofit group dedicated to accelerating research for a treatment or a cure for spinal muscular atrophy (SMA), a neuromuscular disorder that kills more babies than any other genetic disease. For more information on spinal muscular atrophy and Fight SMA, please visit http://www.fightsma.org . About FighterMom Developed by the founders of Fight SMA, the FighterMom program provides information and support for parents who have become advocates fighting a disease affecting their child. The FighterMom Community includes message boards, a news blog, the ability for visitors to create their own blogs, and the Fighting Back Podcast, which features inspirational stories of people and families fighting serious or incurable diseases. The community provides a place for FighterMoms to gather and trade information and support. For more information, please visit http://www.fightsma.org/ Website: fightsma.org End
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