Follow on Google News News By Tag Industry News News By Place Country(s) Industry News
Follow on Google News | Neurofibromatosis Learning Opportunity in Hoffman Estates, ILNF Midwest's 25th Annual Symposium and new iNFo Fair on October 24th
By: NF Midwest Neurofibromatosis (NF) is a complex, often devastating set of genetic disorders (including NF1, NF2 and schwannomatosis) Depending on the type of NF, people with NF are also at a higher risk of variety of other complications. For instance, learning disabilities are very common in NF1. There is also a higher risk of cancer, bone deformities, seizures, autism spectrum disorder, ADD, high blood pressure, scoliosis, speech problems, poor fine or gross motor skills and much more. NF is highly variable in that some people can be mildly affected and others severely. It is also a chronic, life time disorder that will progress, though it may be fast in some and slower in others. NF affects all races, ethnicities and genders equally and while it is a genetic disorder that can be passed on through inheritance, over half the babies born with NF did not inherit it but rather have what is called a “spontaneous mutation”. So anyone can suddenly find that they have a loved one with NF. Every year NF Midwest brings in doctors, scientists and other specialists to educate affected families, individuals and anyone who is interested in learning more about neurofibromatosis. This is a rare opportunity for those affected to improve their lives through education and to benefit from the experience and support of others. Check-in for the event begins at 8:00 AM. The first session starts at 8:45 AM and the event ends at 4:00 PM. The cost is $25 per person and includes a continental breakfast, lunch and snack. Child care is available for children 5 to 17. People may register at www.nfmidwest.org/ About NF Midwest: Neurofibromatosis Midwest is dedicated to improving the lives of the increasing number of men, women and children challenged by neurofibromatosis. As a nonprofit 501(c)3 organization, NF Midwest C.A.R.E.S. by improving Clinics, raising Awareness, promoting Research, providing Education and Support. Services and programs are dependent on funds raised by special events, foundations and individual donations. The NF Midwest service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri. For more information about NF Midwest or to support this program, call 630-945-3562 or visit www.NFMidwest.org. End
Account Email Address Account Phone Number Disclaimer Report Abuse
|
|