PRLog - June 2, 2014 - NAPERVILLE, Ill. -- Ella was diagnosed with Spinal Muscular Atrophy shortly after her first birthday. SMA is a progressive, degenerative, neuromuscular disease that is considered terminal. Ella’s prognosis ranges anywhere from early childhood to early adulthood. There is no cure and Ella has recently become aware that she will never walk. She believed should would be able to walk when she went to preschool, just like her older siblings. The family recently moved to a home that would better accommodate Ella's growing medical needs.
Special Spaces Chicagoland
Ella is requesting grey and pink room with a tree on the wall. She would like something that will hide her medical equipment. To help complete makeovers, Special Spaces Chicagoland depends on corporate donations from local businesses, groups and even other foundations. Continental Motors of Naperville is generously sponsoring this room makeover. Additionally, the paint is donated by Valspar. Some of the bedding was donated by Pottery Barn. The painting was done by Naperville based painting company, Bob Jung Painting and Decorating. Additionally, this room will be Tfilmed by isupportcommunity.org for a documentary.
Naperville resident Kelly Knox founded the Special Spaces Chicagoland chapter in 2012. Since its inception, over a dozen ill children have gotten room makeovers. Knox has a full slate scheduled for 2014 and a waiting list is in place for many more deserving children. The organization’
find peace and comfort? A bedroom of course. According to Knox, “A bedroom to most kids is a personal space—a place that represents his or her unique personality. For a child with a critical illness who spends a lot of time at home in his or her room, that room should be a very special space. A place of comfort and refuge. A place that inspires and gives hope.”
The Chicagoland chapter has room makeovers scheduled on a monthly basis for children in need. Follow the progress on Facebook at “Special Spaces Chicagoland”