- May 15, 2014 -
Mucopolysaccharidosis (MPS), pronounced mew-ko-pol-ee-
sis, is a rare genetic disorder that affects many body systems and that leads to organ damage. Some common names for the disease are Hurler Syndrome, Hunter Syndrome, and Sanfilippo Syndrome. MPS has a wide range of symptoms, and people may experience different degrees of disease progression. Unfortunately, individuals who are severely affected are not expected to live past their teenage years.
The disease was brought to the attention of A2Z Consultants by a team member with an affected family member. Today, May 15th
, is MPS Awareness Day so everyone at A2Z wore purple in honor of those who live with MPS, those who have gone before, and for those who have family members affected with it. We are thankful for the opportunity to participate as an office and would like to shine some light on the genetic disease. Please go to http://www.mpssociety.org.au/mps-diseases
to learn more about Mucopolysaccharidosis and make sure to throw on some purple and help raise awareness today.