Four year old Eliza ONeill was diagnosed with Sanfilippo Syndrome, a rare genetic disease that attacks her brain and could lead to death by her early teens. But, there is a potential cure IF enough money is raised to fund a clinical trial at Ohio State University and Nationwide Children’s Hospital.
In an effort to spread the word from Columbia, SC to the world (donations have come in from Europe, Australia and all over the US) and now to Charlotte, NC. Hall Marine Lake Wylie Marina will be showing “Finding Nemo” in a Boat-In Movie Event to raise more awareness and money. They will be accepting donations thru the summer and at the free movie night events.
Matt Sellhorst, cousin to the O’Neill family and employee of Hall Marine said, “With two girls of my own, we had to come up with some way to contribute. With the help of the Lake Wylie boating community and Charlotte as a whole, I know we can help Eliza’s family get the clinical trial funded before the damage is irreversible”
Future movie dates will be the 3rd Friday of the month (June 20, July 18 & August 15) thru the summer where donations will be accepted.
Saving Eliza – Is a non-profit 501c3 Cure Sanfilippo Syndrome (Tax ID: 46-4322131) to save our 4 year old daughter Eliza. More details at our site http://www.gofundme.com/
Hall Marine Lake Wylie Marina – Serving the Charlotte boating community since 1976 offering boat sales, service & full service marina. More details at www.HallMarine.com