PRLog - May 6, 2014 - OTTAWA, Ontario -- The ME/FM Action Network - mefmaction.com - is proud to be spearheading Canada’s entry in the May 12th Light Up the Night event. This is designed to bring awareness to three disabilities which have devastated the lives of 1.4 million Canadians, yet remain invisible.
Niagara Falls; CN Tower; Ottawa City Hall Heritage Building; Toronto City Hall
Niagara Falls, the CN Tower, Charlottetown City Hall, Ottawa’s City Hall Heritage Building, Calgary’s Langevin Bridge, and Hamilton’s Farmer’s Market are a few of Canada’s public contributions to this event, but anyone with a porchlight or a window is encouraged to participate.
Light Up the Night is dedicated to three illnesses which go under the blanket category of Chronic Immunological and Neurological Diseases (CIND):
● Myalgic Encephalomyelitis/
● Fibromyalgia (FM)
● Multiple Chemical Sensitivity (MCS)
The numbers are staggering. A 2010 survey by Statistics Canada estimated that 411,000 Canadians have been diagnosed with ME/CFS, 439,000 with FM and 800,000 with MCS. The number of Canadians with one or more of the three conditions is equivalent to the number of Canadians with heart disease, and is greater than the number of Canadians with Alzheimers, MS, Parkinsons, or many other better known illnesses. Put another way, the number of Canadians with one or more of ME/CFS, FM or MCS is greater than the entire population of Manitoba. And yet these conditions are out of sight and out of mind.
The illnesses have a profound impact on a person's ability to function. Many people end up housebound and some end up bedbound. The effects of people's lives and the lives of those around them are enormous. The effects on the economy are enormous as well. Imagine if every person in Manitoba was struck down by an illness that reduced their functional capacity. The province's GDP ($56 Billion in 2011) would plummet by billions of dollars
ME/FM/MCS have a long history of misunderstanding and bureaucratic sleight of hand, but the scientific evidence is mounting. The latest research findings were presented at the 11th biennial IASCF/ME conference (http://www.mefmaction.com/
You can contact the ME/FM Action Network’s national office for more information. http://mefmaction.com
Light Up the Night on May 12th, 2014, is a fun way to lend support and boost the morale of those with these diseases. It is also a way to remind those in authority, that the invisibly disabled are there and still need the support which they have been promised.
Here is how everyone can participate:
The challenge is to get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th - blue, purple or green *. There are public buildings/places like City Halls and Niagara Falls. But individual homes are needed as well.
Bragging rights will be awarded to the country with the most photos in each of these categories:
1. Number of Public Buildings/Places
2. Number of Private Residences
All pictures must be emailed by May 19th to be included. When sending the photo, include information about where the photo was taken (i.e. town, region, country) The May 12th team will count and post the photos as they come in and post the final results as soon as possible after the 19th.
To enter, photos should be taken and sent to “May Twelfth” at email@example.com (mailto:info@
“The CN Tower in Toronto, Ontario, Canada will light up blue, purple and green as part of international May 12th Light Up the Night. As it does every night, a standard light show will run for 8 minutes at the top of every hour.
It will be visible via Toronto’s skyline webcam located at http://toronto.webcampak.com/
National ME/FM Action Network
National ME/FM Action Network