Siren Interactive Spotlights Challenges of Rare Disease Diagnosis with Infographic

CHICAGO - Feb. 25, 2014 - PRLog -- In honor of this year’s Rare Disease Day, Siren Interactive has developed an infographic (http://www.sireninteractive.com/rare-disease-infographic) to help increase awareness of the struggle of diagnosis in the rare disease community. February 28, 2014 is Rare Disease Day (http://www.rarediseaseday.us/)—an international advocacy day to bring widespread recognition of rare diseases as a global health challenge.

The infographic, Journey into the Unknown: The Search for Rare Diagnosis (http://www.sireninteractive.com/rare-disease-infographic), is the latest effort in the agency’s educational series (http://www.sireninteractive.com/sirensong/tag/diagnosis/) on rare disease diagnosis and the resources available for those seeking a diagnosis.

“Through my personal experience and our work at Siren, we know diagnosis is an incredible challenge facing patients, families, and healthcare professionals dealing with rare diseases,” commented Wendy White, a rare disease caregiver and founder of Siren Interactive (http://www.sireninteractive.com/), a relationship marketing agency specializing in orphan drugs and rare diseases. “Our goal with this infographic is to further bring attention to the need for quick, accurate diagnoses of rare diseases. Only then can patients receive the right treatments.”

Siren Interactive is collaborating with Global Genes (http://www.globalgenes.org/), a leading rare disease patient advocacy organization, and geneticist Sharon Moalem, MD, PhD (http://www.sharonmoalem.com/), to help advance a diagnosis tool at the Healthcare Grand H@ckfest on March 14-16 at the Massachusetts Institute of Technology. Cross-functional teams will compete to refine Recognyz, Moalem’s facial recognition diagnosis software, with the winning group receiving a cash prize. To offer this tool at no cost to physicians, Moalem is donating his patents to Global Genes.

To view and share Siren's infographic, Journey into the Unknown: The Search for Rare Diagnosis, visit www.sireninteractive.com/rare-disease-infographic.

For information about the rare disease hackathon (http://www.sireninteractive.com/press-release-archives/siren-interactive-brings-together-global-genes-mit-and-bestselling-author), contact Ayesha N. Khalid, MD, at 1-503-789-2203.

About Rare Disease Day

Rare Disease Day was launched in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe.  It is now observed in more than 65 nations, and is sponsored in the US by the National Organization for Rare Disorders (NORD). The coalition supporting Rare Disease Day includes patient organizations, the National Institutes of Health (NIH) and other government entities, medical researchers, hospitals and academic institutions, and pharmaceutical companies developing treatments for rare diseases. For more information about Rare Disease Day activities in the US, go to www.rarediseaseday.us. For information about global activities, go to www.rarediseaseday.org.

About Siren Interactive

Siren Interactive is a rare disease marketing agency with unmatched expertise in addressing the challenges and unmet needs of patients, caregivers, and physicians dealing with rare disorders. For more than 14 years, across more than 30 different disease states, we’ve had 1 focus: Finding rare disease patients and connecting them to our clients’ brands. As trailblazers in recognizing that patient-driven decision making is central to successful orphan drug commercialization, we are constantly innovating to meet patients and caregivers where they live. To learn more about our proprietary approaches to building trust relationships with rare disease stakeholders visit www.sireninteractive.com.