Heart And Vascular Outcomes Research Institute Launches

Nov. 1, 2013 - PRLog -- BEVERLY, MA (Nov. 1, 2013)—Patients suffering from venous disease now have a voice in their treatment and disease management thanks to a patient-driven registry. The Heart and Vascular Outcomes Research Institute (HVORI) announces its launch of the Venous Patient Outcome Registry, a medically-relevant registry designed to assess clinical outcomes for various treatments of deep and superficial venous diseases.

“We need to empower and engage patients by giving them access to their own data. Through this registry, they can access which treatments are working best and compare their outcome with other patients,” says Uchenna Onyeachom, Director of Endovascular Research at HVORI. Before launching this registry, Onyeachom managed the largest venous registry in the world, The American Venous Registry.

The Venous Patient Outcome Registry features both a patient and physician portal—allowing for patient data to sync with the appropriate clinician’s record. To join the registry, HVORI emails patients a questionnaire. The patient can either complete the questionnaire online or through a smart phone app. Once the patient has completed the questionnaire, it will automatically link to the clinician’s record and enter into the registry. Patients can then monitor their own treatment, as well as see aggregate data of other patients. The comparison may lead to discussing additional treatment options with their physician.

The need for improved patient outcomes

Despite the medical advances of the past two decades, venous disease remains understudied and is severely underestimated for its effects on public health. Experts believe that at least 25 percent of the U.S. and worldwide population suffer from venous disease. In fact, chronic venous diseases affect more than 20 percent of the adult population and are more prevalent than coronary artery disease, carotid artery and peripheral artery diseases combined. Additionally, acute venous thrombo embolism is the cause of more than 100,000 deaths in the U.S. each year. Still, the care for these conditions is not standardized.

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Since the Venous Patient Outcome Registry incorporates patient-driven outcomes evaluation, its existence will focus attention on the most important aspect of medical treatment and improve results by directly involving patients in the care of their disorders.

“Venous disease treatments have traditionally lacked objective quantifiable metrics of success and failure. By providing an objective measure of the results after treatment, the registry will drive improvements in quality of care,” says Brajesh K. Lal, M.D., Professor of Vascular Surgery, Physiology & Bioengineering, University of Maryland, Baltimore and Chief of Vascular Surgery, Baltimore VA Medical Center.

To learn more about the Venous Patient Outcome Registry, email hvori@administrare.com or call 978-927-7800.

About the Heart and Vascular Outcomes Research Institute
The Heart and Vascular Outcomes Research Instituteis a nonprofit research organization dedicated to the study of heart, vascular and related disorders. HVORI's mission is to provide excellence in outcome research that is patient focused and thereby improve quality of care, advance clinical outcomes, reduce healthcare costs and drive innovation. Learn more at www.hvori.org.