Myasthenia Gravis (MG) is a neuromuscular autoimmune disease that can be baffling because it is not easily diagnosed. MG symptoms vary between individuals and require individualized treatment.
“We are thrilled to offer this free program to teens with MG” said Cynthia Mandelbaum, President of the Foundation. “It is important that young people who are diagnosed with any chronic disease have a strong support system,” she said, “our program provides a safe environment for teens with MG to connect with other teens under the guidance of a supportive coach.”
A traditional support group is inaccessible to most teenagers with MG because they are few in number and live throughout the country; the video-based solution is an innovative way of solving this challenge. The supportive coach is a licensed social worker provided by Sunrise Counseling Center.
The online support group uses Internet video to facilitate monthly online meetings; teenagers may register to participate at no cost. The groups are small in number and arranged by age range in recognition of the differences between early and late teens. Teens and parents interested in joining the group can learn more at the Foundation’s website, below.
“Fundraising is an ongoing challenge for most non-profit organizations”
About Rachel Esther Myasthenia Gravis Foundation
The Rachel Esther Myasthenia Gravis Foundation, Inc. is a 501(c)(3) not-for-profit organization dedicated to promoting MG public awareness and to empowering and enriching the lives of teenagers diagnosed with the Myasthenia Gravis.
For more information please visit the Foundation’s website at http://www.rachelesthermgfoundation.org/
About Sunrise Counseling Center
Award Winning Sunrise Counseling Center is one of the largest counseling agencies on Long Island, NY. Offering a full range of counseling services, including individual, couple, group and family therapy, Sunrise Counseling Center was awarded Best Counseling Agency, 2012 by the New York State Chapter of the National Association of Social Workers. Visit Sunrise Counseling Center at http://www.sunrisecounselingcenter.com