Creating a Board of Directors containing both individuals with FH and clinicians.
Creation of a Scientific Advisory Board comprised of top lipidologists in the U.S.
Launch of the FH Foundation website as a resource for patients and health professionals.
Partnered with the U.S. Centers for Disease Control and Prevention (CDC) to address FH and the urgent need for change.
Testified at an FDA hearing regarding the need for new FH treatment (http://www.thefhfoundation.org/
Board member presentations at medical conferences around the U.S.
The First National FH Awareness Day took place on September 20, 2012, reaching over 3 million people.
"We are thrilled with the progress the FH Foundation has made in just one year. It's been a busy but incredibly rewarding year. Proper treatment of FH is critical to patients’ long-term health, but the problem is there are so many people who have FH and aren’t aware. Without treatment, it can be deadly. Through the Foundation we’re bringing FH into focus. At the same time we're pushing for new treatment options and educating the medical community," explained Katherine Wilemon, President of The FH Foundation.
Familial hypercholesterolemia (FH) is a common, hereditary genetic condition (http://www.thefhfoundation.org/
In 2013, the Foundation has plans for expanding their reach even further with the launch of the Patient Advocate Program and a Familial Hypercholesterolemia (http://www.thefhfoundation.org/
"We've laid a strong foundation for growth and are already making plans to build further. The educational programs and speaking opportunities are going to be fantastic vehicles for getting the word out. We had such success in our first year. This year promises to be an important one for everyone affected by FH," said Wilemon.
The Foundation is always interested in hearing from medical professionals and individuals who are affected by FH. For more information visit: www.theFHfoundation.org.
About The FH Foundation: The mission of the FH Foundation is to raise awareness of FH (familial hypercholesterolemia)