PRLog - Nov. 26, 2012 - TARPON SPRINGS, Fla. -- "I Am Not a Syndrome - My Name is Simon," the gripping and moving story of a baby diagnosed with a genetic disorder, is now available for the Nook for the time. This highly-rated book by Trisomy mom Sheryl Crosier details the struggle of her son Simon from the early stages of pregnancy to his life here on earth for 88 1/2 days. Simon has Trisomy 18, a genetic disorder in which a person has a third copy of material from chromosome 18.
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Sheryl Crosier's book was first released as in e-book in late August and immediately was ranked very highly on book seller sites such as Amazon.com, where it placed as high as #2 under the Pregnancy & Childbirth section. Now the e-book is available through the Barnes and Noble's Nook store.
Simon Dominic Crosier was born on September 7, 2010, in St. Louis, Missouri. He was diagnosed with Trisomy 18 and lived for three memorable months. Despite his disabilities, Simon had a huge impact on all who came into contact with him. The book is about Simon’s short and meaningful life, his family and his wonderful caregivers. But more importantly, this story documents the family’s battle to advocate for their precious son against an oftentimes callus medical community.
"The Crosier family had to overcome challenges put in their way by the medical industry and even extended family members who never valued Simon’s fragile existence the way they did," explained publisher Richard Nilsen, President of All Star Press. "Author Sheryl Crosier's hope is that this story will help motivate health-care professionals and anyone else that reads this account. The lives of children, regardless of their diagnosis, possess inherent dignity and value, and they deserve the best care our advanced country has to offer."
"There is so much more to this story than reading of a little boy’s journey," added Pat Jonas, President and Co-founder of the Australian Rare Chromo Awareness Network (ARCAN). "It is learning about the legacy for which he was here. Simon will live on in the hearts of many and I feel he truly has a place in mine. I don’t see Simon’s life as a tragedy but as a beautiful blessing. God knew what he was doing when he helped to choose Simon’s parents, for they are the ones who will bring his mission to its full potential."
"I Am Not a Syndrome - My Name is Simon" is now available from publisher All Star Press - Books that Change Lives. It is offered in all online e-book formats and in paperback form from the publisher's website, AllStarPress.com. A portion of proceeds from every sale of this book will go to SOFT, Support Organization for Trisomy 18, 13 and Related Disorders.