National Fibromuscular Registry Offers New Insights into Fibromuscular Dysplasia

May 4, 2012 - PRLog -- The national fibromuscular dysplasia founded by Dr. Jeffery W. Olin from Mount Sanai hospital is gathering information about patients with fibromuscular dysplasia. Data is being gathered from the leading fibromuscular dysplasia centers around the nation. This data is poised to solve some unanswered questions about this very common condition. Specifically the data from the registry should allow answers about choosing the right treatments for these patients. The registry will also allow doctors to explain the natural course of the condition better as it will provide longitudinal data.
Here are a few examples to show how little is known about this condition. Fibromuscular dysplasia is a condition well known to be associated with various vascular complications.It is also known that treatment of renal lesions caused by fibromuscular dysplasia is different than treatment of renal artery narrowing caused by atherosclerosis. On the other hand no one really knows how to treat similar lesions in other arteries. It is commonly believed that balloon angioplasty should also be used in other symptomatic arterial beds, but there is no hard evidence to support this.
Another example of the relative lack of knowledge regarding fibromuscular dysplasia pertains to its etiology. While there are well defined pathological subtypes of fibromuscular dysplasia, little is known about the actual etiology of the condition.
A third example of the lack of knowledge regarding fibromuscular dysplasia involves aspirin. Most vascular medicine doctors taking care of patients with fibromuscular dysplasia prescribe aspirin to prevent blood clots from occurring. But this is not really based on any hard evidence. It is just something that is done. No one has ever proven that this habit should be continued.
The National Fibromuscular Dysplasia Registry is poised to answer questions about the presentation of the disease, about its natural history and most importantly about the value of various treatments.
Visit http://www.angiologist.com for the full story.