Paige Higham is 5 years old and is severely disabled, blind and suffers from a rare form of infant epilepsy called West Syndrome - idiopathic. She can have over 100 seizures a day. Money is needed so that Paige can have her own sensory room; it’s an environment she is happy in and adores and it is a safe stimulating environment for her. It’s a place where Paige can relax and it could even help reduce seizure activity.
To help raise the money needed for Paige’s room – and also to raise money for “When You Wish Upon A Star”, Gary Ellison– together with pals Keith Flood & Dom Burnell - are doing a trio tandem bike ride. Steven Johnson will be riding the back-up support bike and the lads ride from Land’s End to Runcorn in 7 days, starting on Saturday 12th May.
Gary says ”We really want to raise as much money as possible for these 2 wonderful causes and so we have set up a “Just Giving” webpage to make it easy and secure for people to donate – we appreciate any donation from sponsors however large or small. We have already completed the Blackpool Marathon together and the bike ride is a new challenge. We know the ride will be tough and we’ll fall off the bike at least once a day – but it will be worth it!”
The address of the donations page is http://www.justgiving.com/
Meanwhile, Jackie Hayes – Gary’s sister – is organising a fund-raising party on the evening of Saturday 19th May, to welcome the trio tandem riders “back home”. Jackie is owner of “Purrfect Events”, a luxury marquee for hire in Daresbury which is in the beautiful Cheshire countryside and birth place of children’s author Lewis Carroll (famous for Alice in Wonderland).
Jackie says “It will be a really special evening with the £5 ticket price covering all food and entertainment. We are determined to help both Paige and the When You Wish Upon a Star children’s charity. We know how to make a party go with a swing and this is no exception, it’s a fantastic cause and I am so proud of my brother and his friends for what they have already achieved”.
Anyone wishing for more information about the Charity event at the marquee can call Jackie on 01925 740890 or contact her via email at Jackie@purrfectevents.biz
To contact Gary Ellison please email firstname.lastname@example.org
For more information on Paige Higham please see her website at http://princesspaige.weebly.com/
For more information about “When You Wish Upon A Star” please head to http://www.whenyouwishuponastar.org.uk/