The McHale and Dindzans families have worked tirelessly to raise funds that have advanced research efforts to develop a treatment and cure for the number one genetic killer of infants. The SMA community wishes to honor their remarkable efforts and the unbreakable spirit of their staunch supporters.
Mary and Joe McHale founded the Concert for a Cure in 2001 shortly after the diagnosis of their son, Danny, with SMA Type II. Nancy and Andris Dindzans joined the efforts shortly thereafter when their daughter, Ariana, was diagnosed with SMA Type III. Both Danny and Ariana will turn 12 years old this year. The event has grown exponentially from its humble beginnings – it raised $7,500 in its first year – and during this, its 12th year, the event aims to surpass $1 million raised for SMA research.
“We have been honored by the continued support and participation that our community has given for 12 years. To be able to get one million dollars closer to a treatment and a cure for SMA was only a dream when we began. This year, it could be a reality”, stated Mary McHale and Nancy Dindzans.
About Families of Spinal Muscular Atrophy:
Families of SMA funds and directs the leading SMA research programs to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has been involved in funding half of all the ongoing novel drug programs for SMA.
SMA is a disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. SMA is the number one genetic killer of children under the age of two. One in every 40 people, eight million people in the US, carries the gene that causes the disease. There is currently no treatment or cure for SMA.