The concert will honor the memory of Carolina Barcelos Carneiro de Oliveira Miller, who passed away tragically as a result of Epilepsy at the early age of 25. Carolina’s husband, Eric Miller, is organizing this benefit to raise necessary funds to help those living with epilepsy and to honor the life and music they shared together.
The evening will feature a rare acoustic set by Dennis DeYoung of Styx, Marshall Crenshaw, Mary Fahl (of October Project), Dan Reed (of Dan Reed Network), Corey Glover (of Living Colour), Emily Grove, classical violinist and epilepsy advocate Martha Curtis and more. As well as being talented and celebrated artists, each performer holds a personal significance to Eric and Carolina’s life together.
“Almost immediately after Carolina’s passing, I reached out the Epilepsy Foundation of New Jersey to begin work on this project. I thought it was a positive way to direct the tempest of emotions I was feeling and help me along in the grieving process. And for a greater good beyond my own grieving process in terms of awareness and fundraising for the Epilepsy Foundation,”
The event will also host various information and fundraising activities including a meet & greet with the performers and a merchandise/
Carolina was diagnosed with epilepsy in her teenage years, had taken medication daily and kept her condition generally private due to the stigma too often associated with epilepsy. Carolina passed in August of 2011 from Sudden and Unexpected Death in Epilepsy (SUDEP). The exact cause of SUDEP is not yet known. Although epilepsy is controllable through daily medication, still 1 out of 1,000 patients with epilepsy die unexpectedly each year. In those with uncontrolled epilepsy, the risk of SUDEP increases to 1 out of every 150 patients.
The concert aims to provide support and advocacy to reverse the history of stigmatization and further contribute to seeking a cause and cure for epilepsy. Proceeds from the event will benefit the Epilepsy Foundation of New Jersey (EFNJ) and the Epilepsy Foundation of America (EFA) and will be directed specifically towards national research, emergency medication, and public and professional awareness.
Tickets vary in price ranging from $45 to $180 and can be purchased at http://www.comcasttix.com. The $180 VIP ticket includes an autographed poster and exclusive meet & greet with the performers. For more information on the Candlelight Concert for Epilepsy Awareness or Carolina’s story, please visit http://www.candlelightconcert.org.
The Epilepsy Foundation of New Jersey (EFNJ), an affiliate of the National Epilepsy Foundation and The Family Resource Network, provides programs for families living with epilepsy, such as a residential summer camp, support groups, scholarships, referral programs and respite care. EFNJ also institutes free educational presentations about seizure first aid and police training. To learn more, please visit http://www.efnj.com call (800) 336-5843.