"“No Doorway Wide Enough” is Schmalfeldt’
“I was diagnosed at an NPF clinic in Miami and Vanderbilt’s Neurology Department is looking to expand their DBS clinical trial from its current 30 patients to a nationwide trial involving hundreds, if not thousands of folks like me. I felt I should help any way I could,” Schmalfeldt said.
“The title comes from my days as a Navy hospital corpsman at the former U.S. Navy Home in Gulfport, Ms.,” the 55-year old author said. “I used to wonder why it was that some of the older folks tended to stop and ‘size up’ a doorway before walking through. I did a spot-on impression of this effect for my friends at parties. Got lots of laughs. Now I know the reason for it.”
Written in the style of a diary, Schmalfeldt weaves a tale that starts with being diagnosed at age 45, why he decided to participate in an experimental clinical trial that involved brain surgery, and his recovery and life afterwards. With a wry and sardonic sense of humor and writing style, Schmalfeldt weaves an easy-to-read tale of his personal struggle with the disease, pulling no punches over his frustration over the mixed results of his surgery. “It’s the story of my Parkinson’s decade — 2000 to 2010,” Schmalfeldt said.
“This book is written not only for the Parkinson’s disease patient,” Schmalfeldt said, “but for anyone who knows, cares for, or loves someone who has this beast of a disease. The one thing I want people to take away from this book is that Parkinson’s disease is not a death sentence. It’s a life sentence.”
Schmalfeldt said that the book was also meant to highlight the importance of clinical trials in medical research. In 2007, Schmalfeldt volunteered for a clinical trial at Vanderbilt University Medical Center in Nashville to test the safety and tolerabilty of deep brain stimulation in early PD.
“Clinical trials are vital in the search for new treatments and cures in a variety of diseases,” said Schmalfeldt, who works from home as a writer-editor for the Clinical Center at the National Institutes of Health in Bethesda, Md. “Without people volunteering to take part in this kind of research, scientists would have a much harder time finding new drugs, treatments and outright cures for the diseases that have plagued mankind throughout the years.”
Schmalfeldt learned about the clinical trial at Vanderbilt in the course of his duties at NIH. “I write and produce podcasts about the importance of clinical trials,” he said. “What kind of hypocrite would I be if I saw a trial that I was qualified for and didn’t participate?”
This is Schmalfeldt’
He blogs daily at My Parkinson's Diary.
Deep Brain Publications