Kaleigh Myers, CDH patient
March 31, 2010 - Within 24 hours the new video for "I'll Never Let You Go" by The Jammies featuring over 700 CDH patients has gone viral on YouTube with over 1200 hits in 1 day. 100's more people viewed the video on Facebook and blogs. 1200 hits in a day may not seem as impressive as the millions of hits as the video of the baby dancing to Beyonce's "Single Ladies", but for a group of parents desperate to raise awareness this is quite a feat. Never before has there been such a large collection of photos of these patients, such a huge group of families of these patients and such a passion to work together to raise CDH Awareness.
In this heart wrenching video, photos and information are put to music with a song written by the father of a CDH survivor. The song will soon be available on iTunes.com, with proceeds donated to CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. It has also been adopted as the theme song of the "Save the Cherubs" CDH Awareness Campaign.
http://www.youtube.com/
We are so proud of how much awareness this has bought to Congenital Diaphragmatic Hernia in just a day! Created with photos submitted by families affected by CDH and put together by volunteers, this video has been propelled across cyberspace by families, friends and even strangers who heartstrings are pulled and who want to make a difference by raising more awareness.
Congenital Diaphragmatic Hernia
CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born with CDH every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. Over a half million babies have been born with CDH since 2000.
CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more CDH Research, while we continue to support families affected by this devastating birth defect.
Photo:
http://www.prlog.org/
