The Baio Bow
Scott Baio and his wife Renee are very active in heightening the awareness of expanded newborn screening and it's availability and necessity for all newborns. They are also trying to create, promote and facilitate legislation which will mandate expanded newborn screening for all 50 states. They are also very active in trying to raise funds through promotional activities and sales to support children and families affected with GA1 and other OA's (organic acedemia metabolic disorders) through the creation of the provisional support programs (including food, vitamin and emotional support efforts).
A personal note from Scott and Renee,
"As many of you have heard, our family went through a horrifying experience early on in the life of our beautiful daughter, Bailey.
Within days of her birth, Bailey tested “positive”
As it turned out, our prayer for a miracle was answered as Bailey’s final round of tests came back showing that the first tests had been ‘false positives’. Our little Angel was healthy, we were beyond lucky and more than grateful for the prospect of a healthy future together as a family.
As we went through our journey that very long 10 weeks, we discovered that other people are not so blessed. When Bailey was given the all-clear after our initial feelings of joy, we realized clearly that we must not forget those whose miracles were not granted - and that we were obligated by our blessings to try to help others whose lives are being deeply affected by this family of illnesses.
We realized as well that the living hell we had endured during that short period of time is nothing compared to the families that actually have children with some type of metabolic disorder and the difficulties they face with every day that passes.
Within these realizations, came the birth of The Bailey Baio Angel Foundation.
