Following on from the formation of the Parliamentary Friends of Epilepsy in 2008, an initiative of the Joint Epilepsy Council of Australia, the convenors of the Parliamentary Friends of Epilepsy, Jill Hall MP, Sen Gary Humphries, Mark Coulton MP and Sen Clare Moore have called this inquiry so that Senators and Members of the Australian Parliament can develop an understanding of epilepsy and develop strategies to work with people and organisations to assist individuals and their families.
Submissions are invited from all Australians living with epilepsy, their families and carers, and people or organisations supporting, providing services, or interested in improving outcomes for people living with epilepsy.
Your personal experiences and suggestions for improvements in the health, disability or social services systems will help the Inquiry to understand what it is really like to live with epilepsy and the practical services needed to ensure that people living with epilepsy have equal opportunities to participate in community life and the support they need.
The inquiry will be held in Parliament House, Canberra on 30 October 2009.
Submissions should be sent to:
Jill Hall MP
Federal Member for Shortland
PO Box 499
BELMONT NSW 2280
Or by email to Mark.Raper@aph.gov.au
Submissions should be received by 2 October 2009 and should address the following terms of reference:.
• What is known about the incidence, prevalence, mortality and morbidity of epilepsy in Australia;
• Gaps in our understanding regarding the incidence, prevalence, mortality and morbidity of epilepsy in the Australia;
• The barriers to social and economic participation for People Living With Epilepsy, including education, employment, and transport;
• The adequacy of current models of medical care; and
• Practical measures which will better support People Living With Epilepsy.
Additional information can be accessed at www.epilepsyaustralia.net
